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They may have taken you off too fast when i get off i have to go as low as 5 mg cut in half and every other day it takes me a ver long time to taper off of it with minimal side effects do they have you on anything else ? Im taking imuran now and it helps its not like prednisone but helpsView Thread

CarlaView Thread

Hello My Name is Carla I am 25. They told me I had Lupus in I want to say mid to late 04.I was still in High school. Lupus is a strange thing and I'm sure not everyone goes through this but I had a long period of denial. The fact that one day you can feel great and the next you feel like poo is hard. My parents have always been there for me because Lupus is not my only health problem. Having them there has helped, but not having anyone with the same feelings that can relate to me really sucked. That's where this group has helped me. Granted I have never really met anyone from here I can read that I'm not the only person having problems and everyone here knows how tired you can be or forgetful or the wide spread pain.
Feb.14, 2012 I was admitted into the hospital because I was having horrible headaches the cause was my red blood cells we swelling up and breaking I was losing blood and my liver could not filter it all I had 4 blood transfusions within 3 days (I have 3 kids 1 stepdaughter that's 15 a 5yo boy and a 3yo girl) This is the first real flair I have had with my husband and children I was in remission for 6 years. Even knowing there was nothing i could do about this but I felt horrible feeling like all the pain my entire family was going threw was my fault. this is an issue I have felt for a while but being on here I see I'm not alone I see other lupies that are living their lives not letting this problem over take them and it helps me push up and keep going . I would recommend giving your daughter this site it may help her a lot (just try not to force her she may not be ready to face the beast of lupus yet. still at 25 my mother encourages me a little too much to do things and even being a mother myself sometimes I just want to tell her to shut up I know she's coming from a good place) Best of luck Carla
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CarlaView Thread

I have been in a flair for almost a year well i went in the hospital last Feb 14, 2012 for a bad headeach turns out my blood cells were falling apart . so I was givin 80Mg of prednisone and 4 blood transfusions finally got off prednisone in i think May then started having other problems they put me back on prednisone ... now they have me on Imuran and just took me off of Lyrica because i found it was not helping my pain ( I have joint pain very bad ) and now that i went back to the dr he puts me on another fybromialgia med Savella do you think its worth taking another pill ? .... oh yea I also have Stevens Johnsons Syndrome so most of the pills that they give to people with RA I cannot take
any thoughts and has anyone had and side effects to this the Lyrica was giving me wavy vision ( like desert heat vision )View Thread
I have been in a flair for almost a year well i went in the hospital last Feb 14, 2012 for a bad headeach turns out my blood cells were falling apart . so I was givin 80Mg of prednisone and 4 blood transfusions finally got off prednisone in i think May then started having other problems they put me back on prednisone ... now they have me on Imuran and just took me off of Lyrica because i found it was not helping my pain ( I have joint pain very bad ) and now that i went back to the dr he puts me on another fybromialgia med Savella do you think its worth taking another pill ? .... oh yea I also have Stevens Johnsons Syndrome so most of the pills that they give to people with RA I cannot take
any thoughts and has anyone had and side effects to this the Lyrica was giving me wavy vision ( like desert heat vision )View Thread
CarlaView Thread
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