Hi Everyone. I don't usually join forums or conversations but for once I feel like I need to vent! I was diagnosed in 1995 and was in my mid twenties. When my doctor gave me my diagnosis it was a "soft", unsure "you probably have Lupus" thing. So years went by before I finally started telling my Primary Care Physician about extreme symptoms I was having forgetting about the fact that they may be related to Lupus. Finally I was sent to a Rheumatologist who worked with me and got me on Plaquanil and recommended antioxidants. It all worked for a while. I thought I was a very lucky girl able to workout 6-8 time per week (I am a fitness Instructor) and not really suffer any symptoms. Then- three years ago I started hurting in my knees, then other joints. I started feeling tired and getting forgetful. Then my HAIR started falling out all over my head. I started wearing wigs and went to the doctor who said it would come back. It did, but not as long as it had been and a lot thinner than normal! So I still had to wear wigs. Teaching was getting hard because I couldn't find cool enough ones to work out in or that looked sporty enough, or real enough. Needless to say I got very depressed. Went on medication for depression and felt like I was in mourning! No one told me that one day I could wake up and life as I knew it would be different. I cry when I get on web sites like Web MD in search of help as to why I'm feeling like I am. My doctors seem to not know what the heck to tell me. It's always a guessing game with them. THEN, because of insurance changes I could no longer see my Rheumatologist so I am stuck with my GP! This year was the first year in three that my hair grew back pretty and full. Then one day in October I woke up and took a shower. While washing my hair tons of hair washed out and subsequent washes after that til now, Dec 8, 2012, I am practically bald! Now I am online looking for hair that will stay on my head because I don't even have enough for the wigs with clips and combs! I am absolutely beside myself and intensely sad. It doesn't help to know I am not the only one! I'm in a new relationship and I can't tell you how depressed I am knowing I have to explain that I'm bald to my boyfriend......Ugh!View Thread
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