Wow, you have had 6 PEs? Here I am thinking that my 2 PE's was alot. I too have the Filter as well. I am glad you shared your story to help others. Does anyone else in your family have it? My Grandfather died at 52 from a Blood Clot of the Heart and 3 of my relatives passed from SLE. My Cousin and her two daughters. Although they didn't have the Anticoagulant type of Lupus, they did have Lupus.View Thread
Your story is very amazing and interesting. I too have LupusAnticoagulant and was Officially diagnosed in 2008, however I was told I had it since I was a child. Constant Nose Bleeds growing up, I had Toximia with my first child and delivered him at 8 1/2 months and I went into pre-labor with my second child at 6 months and had to be on Bed Rest until I delivered him at 9 months. Both births were C-Sections. I got my first Pulmonary Embolism after my Partial Hysterectomy in 2002 and then got another PE 5 years later in 2007. After the second PE, they installed a Greenfield Filter in the Vena Cava vein for future ones. Unfortunately my Blood Work did not show that I had Lupus Anticoagulant until after 2002. I was very fortunate to deliver both of my sons but it was by the Mircales of God that they both made it. My Granfather died at age 52 from a Blood Clot in the Heart, and 3 of my relatives passed on from having SLE. I have been able to get a great nutrition product that keeps me going, energized, and has eliminated my depression. I hope to hear back from your future results. God Bless.View Thread
WebMD's Day2Night will help you develop personal coping strategies for living with lupus – at home, at work, or with family and friends.
The opinions expressed in WebMD Communities are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. Communities are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatments or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service or treatment.
Do not consider Communities as medical advice. Never delay or disregard seeking professional medical advice from your doctor or other qualified healthcare provider because of something you have read on WebMD. You should always speak with your doctor before you start, stop, or change any prescribed part of your care plan or treatment. WebMD understands that reading individual, real-life experiences can be a helpful resource, but it is never a substitute for professional medical advice, diagnosis, or treatment from a qualified health care provider. If you think you may have a medical emergency, call your doctor or dial 911 immediately.