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lupielee

Joined: 12/15/2012
My Story:
Hi, I am 45 years old. I live in N.J. I was diagnosed with Lupus almost 15 years ago. I also have fibromyalagia and lipomas. I have 2 daughters ages 22 and 20. My lupus affects my joints. I had pericarditis once. Was on medication for that but was recently taken off that and the plauqenil. I am afraid what will happen now. I almost feel like I have become an experiment to my doc. I have always trusted him, he was the only one who figured out what was wrong with me, treated it and got me better. I feel I am way better then I was when I started seeing him so many years ago. Now its a waiting game to see what will happen next with me off the meds.

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too long on plaquenil
hi, I have had been on plaquenil for almost 15 years. 2 weeks ago my rheumy took me off of...More
Posted by lupielee
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Reply: too long on plaquenil
That is the same thing I was originally told, now I am just confused. And I don't have any...More
Lupielee
Posted by lupielee
Includes Expert Content
Reply: too long on plaquenil
I don't understand why he took me off it. I stopped it for 2 weeks then I got a lot of...More
Lupielee
Posted by lupielee
Lupus/fibromyalgia and now lipomas
I have lupus and fibromyalagia and now dx with painful lipomas. Anyone else have these?...More
Posted by lupielee
Lupus/fibromyalgia and now lipomas
I have lupus and fibromyalagia and now dx with painful lipomas. Anyone else have these?...More
Posted by lupielee

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