Hello everyone, my name is Rose. I have had symptoms and a preliminary DX for Lupus SLE. Back then with a house full of young children and insufficient insurance I could not afford to keep the referral appointment with the Rheumatologist which was set up for me by the Internal Medicine doctor who had hospitalized me and put me through a battery of tests.
The pain, joint problems, weight roller coaster, depression and anxiety along with severe fatigue, heart and kidney disease have only worsened and rendered me disabled and feeling lonely. The pain us unbearable at times and I am now about to be introduced to the pain management community as well. I take so much medicine on a daily basis one would think that I am 20 or 30 years older than I am. The stomach problems come and go and at times I have been given Lidocaine solution (2%) to take for immediate relief.
Recently I began to have such severe "Brain Fog" that my children, all grown now, have considered having me placed somewhere or tested for Alzheimer's Disease. The oldest is so frustrated all she can do is ridicule and humiliate me to the point that even on "good days" I don't want to be very sociable because I am concerned that other people may come to the same conclusion or get as frustrated with me as my daughter. All of these symptoms and more also caused me to join the below poverty level income of the Disabled, so now add limited income to the mix and there is total disarray in my life and mind. Based on this information is there anyone who can tell me whether the Internal Medicine Specialist who made the dx over 20 years ago after 5 days in the hospital with a battery of tests was correct?????? After all these years the pain and depression, heart and kidney problems among other things including fatigue and odd sleep schedules has even ME frustrated and wondering what's going on. If I could at least find out what it is and have name for it, I could research, study and learn to deal with it. Don't want the daughter to "put me away" if the Brain Fog and occasional memory lapses are simply symptoms of a DX made years ago. Thank you for your time, hope to get some answers and tips.View Thread
I was told by an Internal Medicine Doctor after five (5) days of testing in the hospital approximately 24 years ago that I "More than likely have Lupus but just to confirm all the testing results I would be referred to a Rheumatologist." However, as the mother of Five young children and without insurance for myself, I could not afford to keep the appointment the IM Doctor had made for me.
Now at the age of 51 I am suffering from pain and swelling in most joints, cannot even force myself to get up and leave the room some days. My hands will often "lock up" on me, I go through "Brain Fog" so badly that my girls want to put me away. There are many other things like severe back and hip pain along with some unreal fatigue at times. The only way to describe the pain is that it feels like my bones hurt not just muscles and often the only thing that makes it better is the hottest water I can find. I am now on disability having heart disease, kidney disease and severe chronic anxiety and bouts of depression, sometimes insomnia and others hypersomnia and hair loss. My question is this: Does it sound as though the doctor who performed all the tests and made the preliminary diagnosis was correct? I cannot seem to find enough materials in researching to answer all my questions.View Thread