Hi all: I posted in another spot but thought I would try here as well. My 19 year old daughter just tested positive to ANA and ds-DNA. She has had enlarged lymph nodes for over 2 years now and has had numerous tests and a biopsy done. Finally she was referred to a hematologist who gave us these results. She has been referred to a rheumy who has a long wait list. I don't know if she will be seen earlier because of her symptoms and pos blood work but I am hoping so. I am wondering if I should be advocating for her to see someone a.s.a.p or if that is just a really worried mom's reaction. From what I can read there is a link to a pos ds-DNA and kidney issues. She has been so sick this last month and it breaks my heart to see her little body working so hard. Any advice is appreciated.View Thread
Hi everyone: Thank you so much for putting yourselves out there (here), sharing your experiences and advice. I am going to pass this site on to my daughter. This week we were told by her hematologist that my 19 year old daughter tested POS for both the ANA and ds-DNA. She had abnormal levels all over the place in her blood work as well. She has had enlarged lymph nodes for over 2 years now, extreme fatigue, aches, headaches and is chronically sick with every bug around. I am worried and wondering if there is any chance that this isn't lupus? Does the ds-DNA basically confirm this? As well, does it put her kidneys more at risk? Her file was sent immediately over to a rheumy so I feel like we are sitting in limbo land while we wait for her appointment. Any advice on these questions but most importantly, how I can support her best right now from someone who's been where she is, would be appreciated.View Thread
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