Hello. I'm new here and not quite sure how this group works; do we just jump in and respond to posts? Or, are medical professionals responsible for response/advice?
I was diagnosed with sle in 1978; kideney damage in1991; had cytoxan treatments; been on prednisone since 1991 (small dose, 2 1/2 mg./day); and had cancer, successfully treated, last summer. My sle finally went into remission after my disease stayed active for 19 years and 10 months. (November 2010). I was 52 and had been retired for 2 years. I don't have all the answers by any stretch of imagination and I'm always open to listening and learning from other people. We never stop learning, ever.
But I'm someone who was diagnosed back when the survival rate wasn't what it is now, which is real good; I continued to work and was offered early retirement after 32 years of employment. I had some rough days, but I'm here. Luckily I worked for the govt. and was not discriminated against.
I'm here if anyone wants to talk - or teach me something new. I haven't kept up on things since remission.View Thread
I'm Marcia, age 54, diagnosed with SLE in 1978; and have been with the same rheumatologist since then. I have the usual 'stuff'' such as SLE, lupus nephritis (sucessfully treated with the cancer drug cytoxan in 1991); raynauds in hands and feet, elevated BP, thyroid, and most recently, successfully treated for cancer last summer. I was lucky enough to be offered early retirement in 2008 at age 50.
I've been married to Joe for 25 years and am the Mom of two chihuahuas. I'm enjoying retirement and try to get out there, shop, whatever, as much as possible because for the 32 years that I worked, Monday through Friday, going to work was all I did. I had no energy left by the time I came home. I also drank a lot of coffee! And had a cleaning lady.Still do!
I suppose my tip would be, "if you wake up and feel good - be happy; whether you go out or stay in, say 'Thank you, Father' and be happy you feel good at that moment".View Thread
I'm sorry you're not feeling well. Has the md increased your steroid dose? My proteinuria used to play leap frog now and again. But it never got to the point where I needed to have to have cytoxan treatment again. I hope you feel better real soon.View Thread
I have a friend who has both. She was diagnosed with Juvenile RA when she was 10 by her late father, a family doctor; and with SLE when she was 32. The RA has given her more trouble than SLE over the years.
If it's any consolation to your friend, my friend will celebrate her 55th birthday shortly.View Thread