I hope you have found some medical treatment by now especially if you have returned to the United States. I am from Tanzania and I live in Milwaukee, WI. I was diagnoised with Lupus Nephritis in August of 2009 while too late because the Lupus had eated 89% of my kidneys.
Lupus is a very difficult iliness to diagnosis so it took me five years before I knew I had Lupus. I started getting butterflies on my face, swollen feet to the extent the blood vessels will bust out blood, extreme fatique that my naps were never enough, brain fog, headache, severe back pain, severe joint pains especially onmy knees, finger nails turning blue or purple, excessive sweating and flashes while I had not rechead menopause yet; blood & protein in my urine, hair falling off, loss of appetite and weight. Heat intolerance be it from the sun or the cooking stove.and even light and the list goes on.
I did chemotherapy with the drug Cytoxan for six months then I followed with Immnosuppresnt Cell Cept 2000 mg a day. On top of that, I had predinisone 50 mg which is now down to 10 alternatinf with 7,5. Also, I was put on Plaquenil 200mg twice a day, Multivitamins, vitamin D because I cannot get it naturally, Ultram & Lorazepam to control the pain. During the course of treatment, I came down with shingles because my immune was so low due to chemotherapy and I was put on more predinisone, Neurontin and Valtrex. After a while, my body rejected Cellcept and I was put on oral chemo which I am still on to this day. Immuran 75ng three times a day. And for my rashes I use Topicort 0.5 cream and hydrocortisone 0.5 ointment.
After four years of medication, I feel much better so long as I take my meds deligently at the same time every day and trying to eat meals at the same time. I no longer is meat so I do not exhaust the kidney. I stay away from rees food and all junk food, I only use Canola and Olive oil when it comes to oil.I also stay away from all food high in pottassium because of the kidneys. More resting is helpful, pacing out activities to avoid fatique and drinking a lot of water is beneficial. I eat a lot of tumeric powder even put on a glass of water because it is an inflamatory agent.
I have talked too much and I hope it helps. I am blessed to be part of a support gropu of the Lupus Foundation of America Milwaukee chapter and we meet every last Tuesday of the month and the the meetings are filled with new expereinces. Also, we get the Lupus Now Magazine quartley which is very helpful. I know by now you are aware of the new drug Benylista which is the first drug to ever be approved for Lupus patients. As you know, Lupus medications are borrowed from other ilinesses such as cancer, organ transplant, malaria, and many more that you will not expect th be given,
May God bless you in your effort to contro your challenges,
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