was just diagnosed with lupus in 2011, but things started way back in the early 70's when i found being in the sun was terrible. i have had the seizure type blackouts. the real problem i am having now is with flareups on my knees. this might help some of you. i was told recently by my dr. that vitamin e would help not having so many flareups. to my surprise it truly is helping, of course mine is so far advanced at this point i have had to buy special clothing to wear and i even had to go as far as to wearing a face mask so that when i'm outside so am totally protected from light and believe it or not not even fluorescent lights cause me problems. i still enjoy living life and doing what i like just in a different fashion. all though i get some pretty strange looks when i'm out and about. i have had one guy in a wal-mart as i walked by say it's kind of early for halloween. i took it with stride people can be mean. it's all part of life. sorry i wrote so much but being alone all the time i just needed someone to talk to.View Thread
WebMD's Day2Night will help you develop personal coping strategies for living with lupus – at home, at work, or with family and friends.
The opinions expressed in WebMD Communities are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. Communities are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatments or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service or treatment.
Do not consider Communities as medical advice. Never delay or disregard seeking professional medical advice from your doctor or other qualified healthcare provider because of something you have read on WebMD. You should always speak with your doctor before you start, stop, or change any prescribed part of your care plan or treatment. WebMD understands that reading individual, real-life experiences can be a helpful resource, but it is never a substitute for professional medical advice, diagnosis, or treatment from a qualified health care provider. If you think you may have a medical emergency, call your doctor or dial 911 immediately.