I would definitely see a specialist for the simple fact that there could be long term damage occurring. Not many generations ago people use to die from complications from lupus. Nowadays this is completely preventable if you get treatment.View Thread
Eye infection is one guess. I suffered from them a lot, and treated them just like lisatru62 said. What I later found out though is that I had sjogren's and the dryness was making me have eye infections more often.View Thread
My doctor put me on Vitamin D when I was pregnant, to help prevent any of the negative effects that I might have if my lupus decided to flare up. It's hard to say that it was helpful, because I was pregnant at the time... but it definitely improved my mood.View Thread
Thanks for giving me a condition to search. Is angioedema different than the swelling you get from blocked tear ducts? Based on the pictures it looks like a general swelling over the entire eye, whereas the tear duct one seemed to focus at the lids. Some of the pictures looked like the puffy eyes that you see with newborns. I wonder how that's related?
I suspected that my grandmother died from complications with lupus (kidney) but what is interesting is that my dad described her as having a puffy face and eyes in the years before her kidney finally gave up. Our family says she died of kidney disease... but many of us now have autoimmune diseases. Since it was the 60's I'm thinking she was just never tested for lupus. This angioedema is only making me further believe it.View Thread
I wish I had this information yesterday. I took my son into the doctor yesterday for excessively chronic dry skin. He is covered in sores from eczema, and every doctor keeps saying put lotion on him.. (like we haven't already tried that!) I mentioned that I have sjogrens and lupus antibodies, and asked if he could be tested since his dry skin is so severe.. and he said "No, because it is not common in boys." Instead he ordered food allergy testing..View Thread
This worries me. My daughter woke up with a swollen eye lid and the bottom lid appeared to have a rash. She has allergies, but I have lupus. I told her it was allergies, but I am wondering if I should have her tested. The last time I brought up my concerns t her doctor (about a different rash) he said it as just allergies and didn't want to test her.View Thread
I completely understand what you are going through. I could be mid sentence and then suddenly not remember what i was about to say. Thee would be times when nothing could make my mouth form the words I was trying to say. It is extremely frustrating and scary. What ends up happening for me is that I develop anxiety and start crying because it is so hard to communicate. I've also noticed that it comes in waves. Some days are simply worst than others.View Thread