I had + blood work in October 2012. No symptoms yet. All we could do was wait and see. In April 2013 we tried and failed with Plaquenil due to an allergic reaction. In May I started with the pain. BAD pain. I was almost invalid. Nothing helped. I lost weight, huge chunks of hair, my spouse was gone all summer so on top of all the pain I had to take care of everything as well. After grocery shopping I would be stuck in bed for 5 hours before I could move. Had to take baths to numb just enough of the pain to sleep for an hour. You get the picture. In August I was officially diagnosed. After I weaned off the prednisone I realized the methotrexate wasn't helping much so I'm also taking Nabumetone. The appt after we increased my dose to 15 mg a week was amazing!! No pain, perfect blood work, and only have to see my rheumy every 12 weeks. All good news!! Well that night the pain started again. I'm back to taking nabumetone, stopped "working out" which was only resistance equipment for 3 minutes. I don't know if I am just being a wimp and I will have to live with this the rest of my life? Or is it something I need to go in for? Where do you draw the line? I deal with crazy needy patients at work all the time and I refuse to become one! What do you think??View Thread
It's hell. I'm having a hard time coping lately as well. The bloodwork came out positive before I had any symptoms in Oct. 2012. All we could do was wait for it to come. In April we tried Plaquenil..suprise I'm allergic. Pain started in May, bad pain. I could barely walk, was stuck in bed for hours, couldn't sleep, move, think, eat, lost weight, lost hair, you name it. I tried to deal with it on my own for 3 months. Was on steriods for a while, officially diagnosed in August and now I'm on Methotrexate. Thank god for my doctor. I'm only 22. I shouldn't have to deal with this, none of us should. It's hard to find a middle ground between trying to be strong and hating life. I was happy I had an answer, but even with almost a year of preparation, I wasn't ready to hear it. I think you should be happy too, and now we need to spend our energy on getting better and trying to see something positive in all this. I don't know about you, but it makes me feel a lot better seeing how many people are going through this with me. I hope it helps you too.View Thread
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