I think that this article overview on lupus will help answer a lot of questions that you might have. As it explains, most people with lupus can expect to have a normal lifespan, especially if they follow their doctor's instructions and their treatment plans. Hope this helps!View Thread
I can understand how frustrating it must be to have our loved one not fully understand what you are going through. It might help for you to share this information with him about how important family support is for those with lupus and offers 7 ways that he can help. Have you had an open and honest conversation about lupus with him? Maybe better understanding the impacts of the disease will help him to be more understanding of what you are experiencing. Please let us know how you are doing!View Thread
This article explains some of the possible symptoms of lupus-- they include skin rash on the face or body, profound fatigue, severe joint pain, and more. However, these symptoms can also signal a number of other health conditions.
Do you have a family history of lupus? We cannot give medical advice or a diagnosis here, but if you feel that your symptoms may be pointing to lupus, it would be a good idea to see your doctor to discuss them.
Hi ladylupus2 and welcome to the Community! I am sorry that it has taken so long for you to get a response. I think that having your significant other read up on Lupus is a great idea -- learning about Lupus will help him understand what you are going through and may give him some insight into how he can help you. This article talks about what to do when someone you love has Lupus. You might use it as a starting point to discuss what you are feeling with him. This video on dating when you have Lupus may also interest you. Please let us know how you are doing!View Thread
As this article says, "There are no foods that cause lupus or that can cure it. Still, good nutrition is an important part of an overall treatment plan for the disease." The above gives some suggestions on foods that may help to ease Lupus symptoms and keep your friend in good health. This article also talks about Lupus and a healthy eating plan -- things like cutting back on caffeine, getting enough calcium and vitamin D, and following a heart-healthy diet. Please let us know how your friend is doing!View Thread
While you wait for others in the community to share their personal experiences and advice, you might want to take a look at our drug center's information on Plaquenil . It does list loss of appetite as a side effect. This information on living with and managing lupus may have some information that can help you with the pain and fatigue you are experiencing, as well as this tool meant to help you cope with lupus from day to night. Please let us know how you are doing!View Thread
Is it possible that this is the natural wave of your hair? When posting, you can click on the camera icon along the top bar of the post and attach a photo. You will have to upload it to a photo-sharing website first, and then use the link to the photo in order to share.View Thread
Are you still experiencing this rash? How long have you been on the prednisone and pentasa? Is it possible that these bumps could be a side effect or possible reaction to the medications? This slideshow has photos of shingles that you can compare your rash to, and this slideshow has some photos of skin rashes or other changes that may be associated with lupus. The best way to get a proper diagnosis is to make an appointment to see your doctor if you haven't already. If this rash has worsened or has not gone away, seeing your doctor is definitely the best way to find relief. Please let us know how you are doing!View Thread
Here is a list of some common lupus symptoms (they include low-grade fever, extreme sensitivity to sunlight, and hair loss among others). You may also find it helpful to look through the Lupus Health Center . The only good way to get your wife a proper diagnosis and to start and treatment she may need is to have her examined by a medical professional. I know that she has had many tests as you have said, but have you brought up your concerns that these may be signs of lupus? Please let us know how she is doing.View Thread