Guten Morgen! I'm Mousey in disguise. (yes, i lost my info and havent been here in years).
Anyway, I wrote a blog about it and the trial I was on, but was wondering if anyone else has had the joy of being on Benlysta (Belimumab)?
I'd love to hear from anyone else who's had it. Or I can share what I've gone through with it and highly recommend it. I'm the only one at my hospital who gets it that I know of. I'm also incredibly excited that it's now recognized by insurance companies for what it is, what it does, and what it's actually for!
I've been on it since 2011 and have had wonderful results ever since.
...My goodness! I think anyone would be depressed after that. o.o
My mom had a friend who had MS, and they thought she had Lupus until the symptoms got out of hand. So it is possible to get the two mixed. Have you seen a Pain Management doctor? They can help you out with pain.
I'm like you, severely allergic to prednisone and get to take medrol, i'm an artist, a writer, and if you ever need to ask about the computer...I'm here. ^.^
Niiice. And yeah, Benlysta Gateway Program isn't accepting anyone like me who's on a platinum plan for individual insurance even though it's basically the same thing, except we're not paying $1236 for it. lol! And as usual they don't accept medicaid of any kind. You'd think they would. -.- Especially since it's about $56,000 when you get the bill. At least it is for me, and that's with everything added together. haha! As for tests, that's awesome! My numbers plummeted and my dsDNA count is in the double digits rather than the quadruple digits. ^.^