If you or a family member has Lupus and is suffering from psychosis of any form, it is imperative that you find out the organic reason for the psychosis with your spouse or family. If you do not have a plan to handle this, then the patient may go off on a tangent and this is not good. My wife became delusional. It lead to our divorce and once a person files for divorce, and even before that, you may lose control and your legal rights as a caregiver are lost. The patient never gets help and lives are destroyed. Make a plan with our spouse and include the doctor, perhaps a family counselor and maybe even a lawyer. Good luck. It is too late for me. There was little to no information on line to help me.View Thread
Does a Lupus patient, who needs a kidney, have equal opportunity on the donation list or are they in a special category..good or bad? In other words, would they discriminate against you because you have Lupus?
Can a person from the Lupus community, say a spouse or caregiver, donate a kidney specifically to a Lupus patient if they are a match..bypassing the normal list?View Thread
My wife has been diagnosed for about 20 years. Her Rheumi is an excellent doctor but takes a minimalist approach when it comes to medication. This has worked fine up til now. But, for the last year my wife has developed paranoia and psychosis. Our marriage is all but over because of this and her doctor won't talk to me, confidentiality. I've pulled up several articles about this and my family counselor says this is not that uncommon as lupus patients pass age 60. But, I find no information about this on any lupus web site. The only advice I get is to reach out to her doctor who won't speak to me.View Thread
Lisatru62 The more time passes, the more I think it is dementia rather than delusions based on inflamation caused by Lupus. However, the articles are split between delusions caused by an inflammation of the brain and other issues of age, but they can not discount the role the Lupus is playing. They just don't know enough. I may finally get before a judge next week and ask for an neuro phschiatric eval if her lawyer doesn't talk the judge out of it. Thanks for your post, it means a lot to me and I think you have made a really good point. DanoView Thread
4ntate, Sorry it has taken a week to respond. Thank you for your post. My wife accepted some cognitive loss many years ago and we always worked around it and did not let any mistakes become more than a minor thing. The paranoia and delusions are extreme and she won't confront them, she denies them profusely and turns the tables on me saying that I must be a sociopath and liar because I deny any of her allegations. We are going through a divorce and there is no hope on the horizon that her lawyer will show any moral character and help her rather than exploit her. Thanks so much for your post. DanoView Thread
Ali, the first challenge is getting her to see the need for help. At this point, she does not. With the support of her friends and hopefully her doctor after the next visit, we can make some headway.View Thread