I was at the ER Saturday night with intense pain in my lower back and into my legs. Tingling started in my feet and went up to my hips. I was given pain medicine, but like you I had a lot of trouble walking. I was stooped over and shuffling. My rheumatologist told me I had back spasms. The tingling also occurred in my face and neck. he said he didn't know what caused that. He isn't doing anything to find out either. He told me it was not a lupus flare because my labs were ok. Whatever. I have had RA since childhood. I've been on plaquenil for two months or so. This started after I started the plaquenil.View Thread
Prednisone is a blessing and a curse. I, too, was afraid to begin it. It has helped a lot with the nervous system symptoms, but at a price. I always look swollen in my face but other symptoms have subsided as the dosage has decreased. My advice is to go ahead and take it; the results could be worse than the side effects.View Thread
Thanks so much for your reply. It feels like a game of Waccamole. I don't like uncertainty so all of these changes are a challenge. I have kept lists of my symptoms but my rheumatologist sometimes isn't interested in them. I think he relies on my bloodwork results more than anything else. I also take pictures of my rashes. This has helped him take me more seriously. I do some things that I believe really annoy him, like researching lupus online. I believe he's a good doctor; I just have to figure out how best to work with him. He's not as straightforward as I want a doctor to be, but I can tell he cares a great deal about his patients. There are dangers he's watching out for, but he doesn't tell me what they are. It sounds as though your husband is intelligent and caring. Mine is also. We are very fortunate to have that support. Take care, and have a wonderful new year!View Thread
A few weeks ago I had an episode where at first I was speaking but didn't know the words that were coming out, and after a few seconds I was aware of my words but it was like my mind was in REALLY slow motion. This passed after a minute or so and I seemed fine after that. My mom has lupus and I am showing some signs of it but no diagnosis yet.
Anyone have an experience like mine where your brain seemed to take a leave of absence and you couldn't talk?View Thread
Since I saw your reply I have seen a neurologist who told me he believes I am having silent migraines and this is what happened to me that day. I have other symptoms that point to this as well. I understand migraines go along with lupus, unfortunately. I have no diagnosis yet but my blood work does show autoimmune irregularities. Hopefully my rheumatologist will determine what I have. And I hope I don't have another of these episodes!View Thread