I have been diagnosed with cns vasculitis, and the doctor does not know if it is related to lupus, for which I have been diagnosed.
my blood test all come back within normal limits, showing positive ana/lupus and the spect scan comes back showing extensive vasculitis inflammation, with 7th and 8th cranial nerve inflammation. Is this all related?
what kind of life am I looking at in the future?
will my headaches be a part of my life?
how do I know when I vasculitis is in remission, and how will I know when vasculitis is flaring, when so few symptoms show in blood test?