I have Sjogrens and used to post here but have not in a while. My question for you that have Sjogrenes as well as lupus or even just lupus is, have you had or do you know someone with uveitis> I was just diagnosed on Thursday and tomorrow I see a new rheumatologist so will find out about Uveitis and how it will impact my life with an autoimmune disorder. I currently dont have a rheumatologist I trust or have comfortable relationship with so I am nervous about this new diagnosis. Any suggestions?View Thread
So I was diagnosed with Sjogrens 6yrs ago. After starting Plaquinel I did great for 5 yrs. Over the past year we added Prednison and I lived on daily Ibuprofen for Joint pain, fevers and headachs just like prior to my diagnosis. So I went back to Brighams hosp in Boston since my local Rheumy yet again is stumped. Boston Rheumy did all my labs and my Sjogrens lab test both came back positive. My RF was positive last time and this time normal, all my labs for inflamation were normal and my ANA was positive. Dr said she has seen cases of patients on Prednison and taking otc anti inflamitory meds can have normal labs while on meds. She has stoped the Prednison and does not want me taking any OTC meds so she can see the real picture. Something I didnt mention to her that I didnt think about until it happened again is that every few weeks I feel like I am having an allergic reaction to my own body. Every inch of me itches and nothing stops it. I will mention that to her when I see her again. My question for all of you is have you heard of someones labs coming back normal even with out of control symptoms just because of the meds they are taking?View Thread
Imuran is just another name for Azathioprine. I am currently taking 50mg a day and am going to be starting my 3rd week on it tomorrow. I have headaches all time time so I will not know if the meds trigger them. Only strange thing I have felt this week is the tip of my nose is tingly like it gets when im in the middle of a migraine but head does not hurt less or worse when its happening. Other then that no strange side effects yet. Good luck.View Thread
I have to take my White Blood Cell Count in 3 weeks. I have been on Prednisone on and off all winter but having diabetes is not a good combo so we are trying Imuran. Did the Imuran work? I just started today so it wll be a little while before we know if it is doing anything. Thanks for responding.View Thread
Hi my name is Michelle/shell04937 and I used to visit this board when I first got my diagnosis of Sjogrens syndrome. It has been 5 1/2 yrs since diagnosis and until this past year I have been stable on Plaquinel 600mg daily. Last fall I was on Prednisone for my fevers and it took 6week to get off the prednison and I was supposed to go back on when fevers showed up again but I held of until last week. Anyways today I had a visit with my Rheumy and he perscribed Imuran 50mg daily. I am diabetic and Prednison is not good on my sugars so this is a trial alternative. I am just wondering if anyone here has had experience with this med. Thanks, ShellView Thread
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