Hi Lynn. Oh boy.....psychosis (that's how u spell it). To be honest with you, I was afraid of that. I am sorry, I just cant lie to you. I know mononeuropathy is a nerve thing, and I have read enough about lupus to know that nervous system damage is possible for you, including moods, depression, and psychosis.......and I also believe that is a very real possibility for me too. I just didnt want to say it, for your sake and mine. I have not told anyone but you about the weird "spells" I have had that could be seizures or convulsions. Have you told doc about your weird episodes? I know we have both had them for a long time on and off (mine for 20 years, and I think you said yours for years too??) they could be part of nervous system and brain involvement. I am saying it out loud to you now and to myself. Yes, I know I am going off the deep end. I keep getting more problems day by day since stopping the plaq and tapering pred. Yes, my husband asked me if i am taking my antidepressant--no, I am not. I cannot afford even the 3 dollars copay for it. I simply cannot afford all these meds and i ran out. I am gonna write evrythig down that is happening to me for the rheum on tuesday, I know I am going crazy also. But you are not. you please watch for any more "spells", moods , memory, confusion, numbness, nerve pain, confusion........I already said confusion. I am confused a lot. memory ans control of my hands ans arms is really getting bad. cant type keep hitting my arms on furnityre counters etc. pleae forgive typing i really cant control and my tips of fingers so hurt from have to go back and correct ans still them type more......i can barely type enough to do it badly like this, sorry I know it is probably hard to uderstand. I hope the prednisone will stop this neuropathy in its tracks ans i bet it will. Dont worry. Just watch and have hubby watch and keep you safe!!! wish i could be there to help.
well, about the babies....i havent seen them and probably wont get to for a long time. my daughter lashing out at me and i dont know why but i cannot make her do anything she doesnt want to. im very worried about her, she is not thinking right, she is afraid of a old boyfriend who almost killed her and she put him in prison and for some reason he is OUT now. she lives in the middle of nowhere and scared he wll be coming after her. she posted online she is getting a GUN. I am shut out so i am so worried and going crazy. They shut off our propane today we cannot pay the 900 bill. It is warm here now though ans we have space heaters. At leats tomorrow i can pay the water and internet cable bills so they wont shut them off. luckily they are waiting till tomorrow!!
My daughter and the babies were the only thig i had left besides lupus. now they are both against me so I am breaking. i thing i am gonna drive up to my church and go in there and pray and ask God to keep me here a lillt longer. and to help you and my daughter and hubby. I know he has a plan, but I dont know how long i can wait to see what it is. Thank you for the kind words. I am not really so nice, I am miserable and now I am just making everyone i touch miserable too. I cant stop myself, i am just being real. you are a great friend but i dont think i a good for anyone right now. this is why i havent been posting. sorry.View Thread
Lisa, that is BS!! I have been to doctors like that, and left in tears!! Please get another referral for a PM doctor, there is someone who will try to help!! I got lucky for once, my new PM doc appt went well. (but for you it would not have since you cant take pain meds). He said to me..."you have lupus and it makes you hurt all the time everywhere"....I have never had a doc be so honest and it really helped to validate my pain. He put me on morphine extended release and it is HELPING. finally a medicine is helping more than a little. I had to stop my plaquenil- was the thing making me so nauseus and stomach problems all day everyday. The PM said when i see the new rheum next week hopefully I can get on a med to control lupus better and until then all he can do is try to help with medications, because he doesnt know what will be better when lupus is more controlled. He is gonna start me on savella to try for pain and depression and fibro next month...tried it once, but willing to try again. I dont know how you do it, I am very thankful you are here!! I feel like there is no point to my life anymore.View Thread
I went on facebook and dont see where anyone is...just confusing blank sites or the LFA, which the wall page is weird.....can anyone send me to the place that is sooooooo great and everyone from here is now there?
I am sorry, for some reason I cant type or see very well anymore. Please excuse, my hands just cant hit the keys right and i am tired of going back and back and trying to correct. please forgive me.
People PLEASE come back here!! Like evryday, so many say they cant work, so come here. Me and Pug cant work and need other people to come more. If not, and you cannot, forgive my plea. I know we are sick and the rest of you have lives to lead, I just dont.View Thread