Hi everyone. I am changing rheummys due to my disability medicaid not being accepted to my current rheummy. He was the one prescribing my pain management, so my PCP took over, but the policy is only until they can get me into the PM doc. Which is great, I got in for this Thurs!! All the other times i've looked into it the referral time was like 9 months!
I just HOPE they will help me a lot more than my current which is NOT helping nearly enough!! Loratab, and gabapentin, and that's it. I have been on the same 10/500 dosage for 14 months, and it isn't woring as well at all now.
Anyone have experience with how they approach PM with lupus??View Thread
What do you think of "fibromyalgia" and or FMS, fibromyalgia syndrome? Have you been diagnosed with it?
I was diagnosed with "arthritis" and fibro several years ago. Fibro, at the my own urging of the doctor. He did agree, though. I talked him into Rx-ing prednisone for it, too. Because I knew the medrol dose paks helped me and thought daily dose (5mg) would help me. I needed it to be able to work my job, waaay back then.
But, now, looking back, I can see that it was just a "name" for what was wrong with me because no one knew what was wrong with me!! Spinal arthritis came up soon after.....
Back then they knew nothing about fibro, it was just a name. A label, and not really a good one. A lot of people thought "fibro" patients were just pill poppers looking for pain meds. Or lazy people looking for a disease to claim Social Security benefits for...
Current definition of fibro is very specific, and there are meds specifically formulated to act on it's type of pain, nerve pain.
I know many autoimmune patients also are diagnosed with fibro also. So much so, that it is treated mostly by rheumatologists because they see the most of it.
I think fibro comes (DEVELOPS) after a person has been in chronic pain for some time. Moderate to severe pain. I think that is what exites the nerves (intense pain and consant stiulation) and inflames them, damaging them and thier processes. Then they chronically are screwed up---and cause pain. Like they have "pain memory " and it sticks. They don't heal in some people and become widespead pain generators.
What do you all think on this subject? And are you diagnosed with fibro? What do you think of your diagnosis? True or not?
Jessi, live in rural Indiana, currently disabled, used to work as an analytical chemist in the pharma, ag, and med. device fields. Boring to most, most interesting to me...... Yes, definately a science geek!! I also worked in patient care and medical office for mannnyyy years. Now, I am not working at all, due to my continual medical problems!! It sucks!!
I have had rayauds for 25 yrs. Never knew what it was till I saw a rheummy 10 yrs ago for a swollen knee that stayed for a month and was helped only by prednisone. That's when it all started for me. The first time a Dr mentioned lupus. I have had progressively worsening arthritis and spinal arthritis ever since, along with many other issues related to it.
I a in a transition right now and its scary. I had to find a rheum who takes my isurance, so I had to leave mine, who has been wonderful and just finally diagnosed me with sle dec 22 after seeing me for about 16 months. So, my PCP has taken over all my care until the new rheummy takes over the 22nd. I am also seeing a ne pain management doctor on Thurs. , which is really scary because I have no idea what he'll do. And I fear pain......!!!!!!!!! Not kidding.
OMG Lisa!!!! Wow, I have never heard that story before, that is horrible!! It really freaks me out, because I just got bit REALLY BAD by a dog in December, and my Dr. said I already had cellulitis when he drained it, it was literally as big as a golf ball stickn out of my forearm!!
The Dr said thats why he had to drain it, I would just continually get cellulitis and it could get really bad, especailly in a lupus flare.
It is nice to have someone who understands what we go thru. My hubby is at a loss with me lately, and he has been spending 24-7 with me, so he see's how ridiculous it seems to be sick every dam day, in one way or another.
I didnt take my evening dose of plaquenil and so far my stomach is ok. I have to call today and see if they can be stopped or need to be tapered. But I am gonna try it and see how it goes. I am a little scared to stop it, my pain may get worse, that's what I have always read from people who quit it. I just dont know any other way to tell if it is hurting or helping.
I like the gaba too, it is good for pain. I dont know how this thing with your leg is gonna turn out. It would be nice if it was simple and just got better.....we can hope! Lupus can affect nerves, maybe the nerve is inflamed and if the inflammation goes down maybe it will help the symptoms. Wonder what your reg doc will think.
Well, hubby is already off to work. I didnt sleep except for an hour and a half, so I am gonna try to rest a couple hours. I hope I dont wake up sick!! Hope you don t either!! I will talk at ya later, have a good day and pain-free.....hugs, jessView Thread
Hi Pug! Well tonight I feel a little better. I have had so much joint pain and being sick to my stomach lately I have been thinking about my meds. They havent been changed in a year or more, some. I didnt take plaquenil tonight and my stomach is holding steady....YEAH! I am gonna go off the plaquenil to see if it is helping me or hurting me. Lately, I feel like I am "poisoned" inside. Also, my pain medicine has tylenol and I want to stop that. I do take gabapentin, and it is one I dont see a problem from, it helps my pain a lot.''
Maybe the new docs can suggest some different meds.
I hope your leg calms down. I guess you just have to follow up with the neuro and see, depending on what your reg doc says. It sucks! Mine has calmed down, no more nerve pain. Just joint and muscle pain the past few days.
I was watching axmen and that is crazy-scary!! I could not watch it. Heights scare me, but that all is much worse!! If your hubby works in that industry, he is a tough and brave man!! Hats off! Hubby has his first full week of new job this wk. Supposed to get a foot of snow starting tomorrow night, I hope not! The way this winter has been, we probably will get it. Well, I am gonna go. I am so bored having just loafed around miserable! Have a good night, hugs!! jessiView Thread