The back ground is still blinding to trigger headaches so not sure how much I'll be on here but sorry, I don't mean to be gripping. I'm actually happy for you! I know it can be hard having priority things to take care of and staying on top of them while dealing with Lupus. I myself have been getting more involved with the Florida lupus foundation and Shine org. Which of course takes spoons.
Regarding the survey; I do have anti-phospholipid antibodies 2ndary to SLE and I'm on anticoagulant, (rat poison). I've had a couple DVT's and a few PE's and I think I had a TIA. My routine follow-up with the Hemo. happens to be today. Since my blood has to be checked so often they did finally approve and get me my own finger pricier testing machine for the PT/INR which has helped a lot. No more constant nurse visits or me trying to get to a lab.
I wanted to also mention to Joan, depending where in Florida you live, the Florida Lupus Foundation has support groups that meet every month. Let me know if you're interested in attending and maybe we can find one close to where you live.
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