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I try to keep to a schedule and I don't do things for others like I used to. before Iw ould say yes but mean no.. terrible for me!!View Thread

Thanks for repling I'll talk to my wierd Doctor next week when she gives me my report on liver failure..yippee!View Thread

Jerri, Hi Merry Christmas to you, I was wondering how you are doing with the new meds, I saw you take Benlysta and I haven't started it yet, my liver tests won't let me the GGT is triple what it should be so I have to wait but I was wondering how you were doing with it???
Thanks
Kathi,
Kathi758@yahoo.comView Thread

KathiView Thread


The tension goes and I feel 100% better til the next day...
My problem is my rhumey tells me I don't have Lupus anymore since my rash is gone.. I have one word..idiot...but now what?? he's the only doc in this area on my insurance... what do I do to work with him???View Thread

each week I was to go to the ymca and swim, adding 5 minutes to each week starting at 5 minutes.. ok, I did it, once I got to 30 minutes, I went 30 in the am 5 minutes in the afternoonor evening. the following week 30 am /10 pm and so on till I went 30 in the am and 30 in the pm. I have not been in the chair since and when I get wiped out I sleep and when I have enough I start all over again with his program it's been 8 years but I go back to it often.Just last weekend I slept all weekend and this week I am bak on the reprogramming of my muscles so they get out of the sleep routine and back to the working for me! I feel more incharge of me again. yes I get terrible fatigue and yes I hurt and I run out of spoons but I will NOT let lupus run my life anymore I adjust my life to fit the lupus. I am on disability so thankfully I don't have to find a job that would work around the sleeping issues I feel like I have the flu alot! which is how I explain to my friends. now I tell them I am out of spoons. eamil me anytime you need a shoulder @ Kathi758@yahoo.com and I will respond.View Thread
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