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It's been awhile, but I had back surgery in March. The first few weeks I did fine. But, with docs okay and some restrictions like I went to visit my daughter, my grandson, and my son-in-law a marine, for 2 weeks.
I had the greatest time, spent nearly every minute with my grandson who is now 17 months old. He and my daughter lived with us for 7 months, while Daddy was deployed.
Anyway, needless to say i wrecked my new back, but it was worth it. Had no pain while there, but after, I am having a lot of pain. i see surgeon soon and the x-ray will hopefully show no damage. It feels more like muscle pain.
But my Lupus is fairly quiet, I've been getting good sleep, and that always helps.
How is everyone here these days?View Thread

She has the mouth ulcers and nose ulcers that never go away. They are large and all white. They recently did a biopsy and they are benign. One in her mouth, far back, is most painful. It was explained to her that it is near a bone and that is why it hurts so much.
I forgot how to look up old topics, so I have to ask, what is the best treatment? She takes plaquinel, and some gerd meds. Her doctor is not nearly as aggressive in her treatment of Lupus as mine.
Also hello to new members. TinaView Thread

I check in occasionally on this board, it's not like the old days, when a question was posted, you would get several responses in the next hour or so. I miss that.
I will check in more often, when I have something that I really need expert advice on, I come here.
My Lupus is under control at this time, I know you have been having some problems. How are you doing today?
thanks again, your help means a lot to me, TinaView Thread

They are calling within two weeks to give me the exact date for surgery. Probably early Jan.
I am getting a new artificial spine disk, with a titanium plate in front with 4 screws and a titanium plate in back with 2 screws. I will have an incision in the front lower abdomen and also in lower back. The cushiony disk that should be between L5 and S1 is completely shot. Surgeon said it is "bone on bone".
The cause is from Lupus inflammation in other parts of my body, putting extra strain on tendons and ligaments in lower back. Not from an injury,as i first thought. (remember the dogs hurled me down the deck stairs?)
O.K. now about the Lupus blood disorders, after testing and retesting, we got down to the nitty gritty of the anti-phospholipid antibody syndrome. This term covers a lot of different disorders that all but one cause clots. I have the anti-cardiolipid, risk of clots. And the one and only phospholipid that causes excessive bleeding, the anti-prothrombin anti-body. They only know of a couple of cases where someone has both at the same time. My Hemo is going to be on hand during the surgery and is ordering a special medicine that will stop the bleeding, if that happens. Having extra blood on hand will NOT help, it takes a medicine that sounded like rhfactor something? something?. And I'll start the Lovenox shots and continue 325 mg. aspirin daily to avoid clots.
I was nervous, but after seeing the docs today, they have all bases covered, and they don't foresee any problems for me, just that I will feel much better in 3-4 months. I will be able to play with grandson Gabe,
when they visit end of January, if I sit on floor and not twist, bend or lift. Well, so much for this episode in my Lupus Saga.View Thread






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