I don't know why I have never gone to the emergency room. I always wait to see my Rheumy. I think it might be because I honestly don't trust other doctors, for years they made me feel like a hypochondriac or an alarmist. I took my adult son to the E.R. one blizzardy night, for a torn and dislocated knee. I first called an ambulance, but they would not come because of the blizzard. My boyfriend shoveled snow and pushed my little car all the way to the highway, we finally arrive at the E.R. and the doctor had a really bad attitude, because we woke him up. After all that, he just told my son to call his doctor in the morning. He was in so much pain, and he is not a wuss, he was in the Army. When he got to his doctor and had x-rays, his knee cap was broken in three places with torn ligaments, he required immediate surgery and now has pins in his knee and another surgery to do. I know doctors are human, but the good ones are few and far between. oh, here's another story, my best friends dad, left work in the a.m. drove himself to emergency with chest pains. They told him the tests didn't show any problems and told him to go back to work. He died from a heart attack that afternoon. I actually have more stories like this, but you get the point.View Thread
The fall might have been a TIA. I didn't know I fell except a table had been knocked over, I picked up the table then I went downstairs and my boyfriend said "you are bleeding" and I had this deep gash behind my ear, that I didn't even feel. It was 6 days before the doc could see me, and she ordered stitches and a whole bunch of tests, which revealed the polyneuropathies and the hypothyroidism, to add to my list of Lupus caused issues.View Thread
Lupus anti-coagulant and Anti-phospholipid antibody syndrome are common with Lupus, especially for those whose disease attacks the blood system. I have both and have used lovenox shots in the past along with aspirin. What's weird is I also have a fairly severe form of Von Willebrands, which is opposite of the other two, because it causes excessive bleeding. My primary, Rheumy and hemotologist, can't agree on treatment, so it has been a compromise of 325 mg of aspirin only. Since your dad had a stroke related to Lupus, I am sure he has been tested for and has one or two of the clotting problems. Along with the blood thinner, 80 mgs of aspiring should be good. My mom's Lupus was discovered after a stroke also. What I am beginning to realize after 8 years or so of treatment, is that this disease continues and progresses no matter what we do for it. Maybe it slows things down, but we really need better meds and while I am "wishful thinking" a CURE would be really great!View Thread
my sed rate was 60 when I was having troubles and the doctor told me that was very high. The polyneuropathy and hypothyroid caused my problems, but they are discussing plavix or other blood thinner to add to my 325mg. of aspirin. they did a carotid artery test, no clots and have an MRA and table tilt test to schedule soon. My doc thinks TIA may have occured but not a major stroke. I want to get a steroid shot in my back, but can't if I am on any blood thinners including aspirin, so as of this morning I left a message for my Rheumy, to see about not taking it for 5 days.
formydaddy, your dad needs to see a spine doc, phys therapist, get scans of neck, head and heart work-up, nerve conduction test, and more blood work to check for Lupus anti-coagulant and Anti-phospholipid antibody syndrome, At least that is what my Rheumy is doing for these symptoms.View Thread
I get "chest wall inflammation" I really don't know anymore than you do. Pleurisy is very common with Lupus. They are two different things, but you might look up "Pleurisy". If it doesn't fit, then I would just chalk it up to Lupus inflammation. I had a collapsed lung once, and the inflammation feels similar.View Thread
Last week we ran some tests and found Hypothyroidism and Polyneuropathy. Started synthetic hormone for thyroid, and the Doc is sure it's cause, is Lupus, so she doubled some of my immunosuppressants. I do have a herniated lumbar disk and I thought, that might be the cause, because two nerve roots are being pinched.
But she is sure it's from Lupus. I did some research and neuropathy in one area alone, is probably from and injury. Poly (many areas) neuropathies are usually from auto-immune activity. She also thinks I am getting better, her biggest concern the Lupus anti-coagulant. I have a trip planned next month with kids and grandson to FL, to see their grandma and my sis and my brother...View Thread
So glad you are finally feeling better. The steroids are the best thing for a Lupus flare-up. Sometimes stronger meds are used, ones with a mild chemo agent in them. Every flare is different for me. 2-4 weeks is normal for me. In the beginning it was severe joint pain and swelling, now the pain is not so bad, but dizzyness, blood disorders, and nerve disorders are more a problem for me now, I think because the meds keep inflammation down, I take prednisone everyday, flaring or not, a low maintenance amount plus a dozen other meds, so like I said the painful inflammation is better, but the disease still finds ways to destroy my healthy parts. Since you said "finally" went back on steroids, I would guess that by putting off the medicine, it might be why this flare lasted so long.View Thread
I just got over some dizzy symptoms. The doc ran some new tests and found polyneuropathy and hypothyroidism. Your doc might have referred you to a neuro, because 1st they rule out a tumor, then they look at the nervous system. Now they are ruling out clots in neck and brain, just to be on the safe side. I fell backwards and "fainted" once while dizzy. And still have to hold on to something during shower while I close my eyes for shampooing, or else I would tip over. All that stuff is polyneuropathy. Treatment is treating the underlying condition, which in my case is SLE. It's more common with Diabetes.View Thread
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