Yes I agree, even tho for a lot of us the depression was diagnosed first, doesn't mean the Lupus or Fibro wasn't there then or before. Then I think it adds to the problem of getting a proper diagnosis, because fatigue and joint pain are depression problems too, so they don't look for anything else until you get really really sick. It takes too long for most to get properly treated by a Rheumatologist.View Thread
I have Sjogrens and Lupus. It causes a dry sticky mouth all the time and my teeth break and I have Episcleritis (arthritis of the eyeball.) Thirsty all the time. Esophagus muscles are very weak, have to use drink to get food from throat to stomach. Saliva glands always swollen.
Medicine is Salagen. It helps with the dry mouth, eyes.... The first dose I took, I started drooling, which was a weird sensation, since my saliva glands haven't worked for so long.View Thread
Depression and anxiety are diseases of there own, but how many of you think, it is usually a symptom of something more?
I was gabbing with a ultra sound tech, the other day during a test, and her sister was recently diagnosed with fibromyalgia. She believes her sister has Lupus. And we got to talking about what comes first, the depression or the Lupus and Fibro. She believes depression is almost always a secondary condition, and a patient suffering from depression should test for diseases that often coincide with it, like Lupus and Fibro, and most chronic illness.
I struggled with depression and anxiety all my life. Even was on sedatives in 2nd grade. But also, had early childhood symptoms of Lupus, as well. And I have talked with my therapist about this question... and have had some interesting conversations, but decided we simply don't know.
Dang, so sorry you can't take those meds. One you didn't mention is Flexiril. It is a muscle relaxer. It helps my pain by relaxing the tight muscle around an inflammed area. Lyrica, helps with nerve pain, or is suppose to, not sure yet. It's a Fibromayalgia drug, but also used for nerve pain in Lupus. Have you tried the steriod shots? I don't know if that would still hurt your liver. But they inject it right into the painful area. Sometimes people get immediate relief, others it might take a second round the following week. I hope this helps and non of the meds I mentioned are narcotic. Get well soon.View Thread
Yes, my malar rash comes and goes and at it's worst is hot. I think of it as inflammation under the skin, so don't get sunburnt, you'll fry from the inside and the outside. The cool cloths are all I use.View Thread
Try opening your picture in Paint, click image, click size/scew, then change both horizontal and vertical to 25%. It will reduce the size of picture. Save. Then try the download again. Hope it works.View Thread
I know this is a hard time for you, and all the unseen things going on and your emotions must be shot after such a long flare.
This is the time to muster any energy you have left to see your doctor again. I know you don't want to, don't have the energy to, so ask a friend or family member to take you in.
Have you seen any improvement at all? Is your joint pain in the tolerable range? If not get the steroid shots, if you haven't already. It sometimes takes a couple rounds to bring the swelling down.
Also, and again, I know you are too tired, but are they testing and scanning and doing everything they can to understand what body system is under attack? Or are the docs just saying "It's the Lupus" ? If they are just saying "it's the Lupus" then get all the rest and quiet you can. It's the only thing you can do... unless you are unsatisfied with your doctors, then seek a second opinion.
As for your family, don't feel guilty, easier said than done, I still feel awful about a flare I had two years ago while visiting mine out-of-state, went down to help out for two weeks and they asked me to leave after two days. I was causing too much worry and all I could do was cry. I was irrational and confused, which is normal with a flare. Your family will get over it, but for now, you must focus only on yourself without feeling guilty. Do whatever it takes to get well, better days are ahead for you.
A Rheumatologist is the most qualified doctor to treat Lupus. The trouble with balance and walking is something I have and was just diagnosed with Polyneurpathies. A nerve conduction test confirmed it. Also, he needs to either rule out or confirm several secondary conditions that go along with Lupus. Lupus anti-coagulant, anti-phospholipid antibody syndrome, the list goes on and on and on.
It's not so much that there are different kinds of Lupus (*4), but Lupus affects everyone differently. There are 11 body systems and Lupus can attack any one of them. Finding out where his Lupus is attacking is most important.
If he has a good and thorough doctor, it's very possible to get his Lupus into a manageable state. And he can walk you down the aisle. A good doctor is the first step to success.View Thread
one important thing to remember for all of us is that a negative test does NOT mean nothing is wrong. It only means the docs haven't figured it out yet. Also, I have just recently learned that some conditions take years before a test will show it. This is when you need to be your own best friend. It could be so many things, keep on your docs to find out more.View Thread