I just want to confirm what Lupylisa said. A few months back I had the opportunity to meet with about 15 other Lupies. Of that 15, two had lost all their hair. But it was growing back for both of them.View Thread
I read one article that said expect beginning of 2011. So hopefully you were right the first time.
But I worry that a year after we all start this medicine we will see commercials for a class action suit. But ofcourse we take risk with our current meds too. If it makes my flares less severe and less frequent...I'm very excited about it.
WELCOME! Glad you found this site. It's great group of knowledgable Lupies.
So sorry about all the allergies. I have found Tylenol to work better than the Ibuprofen's. Have you tried muscle relaxers? Also if your Lupus is flaring and you can't take prenisone, has your doctor suggested Methotrexate or Cellcept, to quiet your Lupus down a bit. But they have side effects too.
See your doctor today, if possible. , or asap. You need treatment, your Lupus is very active.View Thread
oh and about the joints cracking. I'm sure you have that all the time, what you might be experiencing, that feels different than the rickety ol cracking, is the joints going back in place after being pulled and stretched from inflammation.View Thread
Yes, it's the last thing to stop with many of my flares. The doctors have seen it. Shaking hands, off balance, I was told it is common with Lupus flares, it leaves us so weak. But I would call your doctor, there could be a different cause, that might be more of a seizure type thing. Either way, I am sure you doctor would want to know about it.View Thread
Is this possily neuropathy that the neurotin has caused? For what condition is the neurotin treating you for? I took it briefly for restless leg syndrome, but soon had to go to different and stronger meds. When I developed polyneuropathy, I was told to cut to half the usual dosage. While researching neuropathy, there was alot of mentioning of face and body going numb and pain. I don't have that kind, and I am just learning about this, but your question caught my eye, because I have just been reading about it. You should call your doctor and get in asap, with these symptoms. A simple nerve conduction tests can show what is going on. My doctor told me, that mine was from Lupus. So Lupus treatment has to be more aggressive.View Thread
Whenever Lupus is active and even when it's not, I just don't know how I will feel day to day in regards to fatigue. It's hard to explain to others, after all everyone feels tired, but it IS different. If I am experiencing Lupus fatigue and don't lay down, I will soon become red, swollen, migraines and throwing up. It's one thing we just can't ignore and push thru, like we want to.View Thread
Dealing with a couple new diagnosis's, one is treatable "Hashimoto's Hypothyroidism". I might even be able to lose a little weight, so am glad they are treating me for that.
My doctor called to answer my question " Are the Polyneuropathies autoimmune or from Herniated Lumbar disk pinching nerves?" She said Auto-immune, so tomorrow when I see my Spin surgeon, I will probably opt OUT of surgery and just continue phys. therapy.
There are 11 Body Systems. My Lupus has now officially waged war with all 11. I now have 17 associated diseases and syndromes, from the blasted SLE.
But with the medicines and my docs and lifestyle improvements, all are manageable, and just a part of my life.View Thread