At my last doc visit. She doubled my methotrexate, doubled some others, and wrote a new script for Folic Acid and 50,000 IU of vit. D to take all at once one day a week. don't know why. what test showed this needed to be done?View Thread
My lawyer lost a very good letter my Rheumy prepared for my hearing. I remember the third party doctor saying "It is a shame we don't have a letter from your doctor" I could only give an evil eye to my Lawyer, as I was to not interrupt the doc. But he had confirmed the Lupus and the blood disorders, and the judge made a bench decision, right then and there, because I met the criteria as listed in their book of qualifying disabilities. In those cases, that meet the criteria, you will be sure to get approved.
It gets more complicated if you don't have any organ damage...I didn't use depression, but that and some of the other things that go along with the disease might tip the scales in the Lupies favor. But since it doesn't meet the criteria they require, it's very important that the third party unbiased doctor recommends disability. The judge takes that doctors advice usually, I was told. You will have no control over what this doctor says, you won't know until the hearing.View Thread
You gave us perfect info. I went thru the disability process about 5 years ago. It wasn't the Lupus itself that approved me, it was Lupus along with a Lupus blood disorder. Still I had to get a Lawyer, because the judge said the information needs to be presented in a certain way, and they wanted a third party doctor to confirm my conditions. Thanks for sharing this info.View Thread
I have had many good-hearted people tell me or give me immune booster vitamins and things. So sweet they just want to help, they just don't understand this disease. That is one reason we need more public awareness. I even have a niece of my boyfriend, that was diagnosed with Lupus at age 10, and the parents don't believe in prescriptions and are giving her immune boosters. We argued about it for a long time, and I send them information. I am afraid for the little girl.View Thread
The red hot rashes appear on me, even when not in the sun. And sometimes when I do get sun, I don't have a reaction. It's just one of many triggers to try and avoid. I don't think science has really figured out the malar rash causes yet. I just know that with any type of joint inflammation I get the malar rashes whether I've been in the sun or not. It also appears when I am extremely tired or have "overdone" Sometimes a couple days of resting/sleeping, will improve the rash. Plaquinel helps, doesn't prevent all flare-ups, but reduces how many flare-ups I have.View Thread
use a mineral bronzing foundation, then pat with powder. also instant leg tanners are great. for swollen neck area due to steroids, use a scarf that hangs to a V, to cover some of the swelling during tank and t-shirt weather, but remember protect yourself from the sun with hats and sun blockers.View Thread
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