There are a ton of ways that lupus affects our bodies. This (osteonecrosis) is how lupus has affected me (this and Shrinking Lung Syndrome)..
It has stolen any semblance of a life I had and reduced me to barely walking because of the pain from osteonecrosis and/or the shortness of breath caused by Shrinking Lung Syndrome. The shortness of breath is so severe that walking more than a block without a rest is unheard of.. Not walking those blocs has caused my weight to increase and increasing weight which increases the pressure put on my already compromised joints.
So, which came first, the chicken or the egg? All that I know is that this can't go on like this and I'm tempted work harder, EVER SO HARD on the weight.
Because the lupus, or steroids have cause osteonecrosis in nearly all joints and the Shrinking Lung Syndrome prevents any kind of exercise except the exercise with the ex physiologist. I've become so sedentary, to sent arty and my weight is nearly 100 # higher than it was 10 years ago. It's a caches. I need exercise to assist in weight loss, but I cannot exercise because of too much pay or too much SOB. BMI THRITY SEVEN-that was never to be me.
Last year I tried weight loss of nutrisystems and lost nearly 30 pounds. That was not a problem. Now, with no more money in the 'till' It's salads, salads, salads, and lean cuisine. Lance Armstrong's 'livestrong' was all that I needView Thread
There can always be reactions to vaccines, like tenderness for a while at injection site, mild fever, redness or swelling at the injection site.
However, those are not reasons not to get vaccinated; in fact, I just had tetanus (Tdap) yesterday and I've not had any problems. Ususally any side effects like that go away. None, the less, talk to your doctor about YOU SPECIFICALLY. I'd imagine if you've had a reaction to one vaccine in the past, you're more likely to h ave a reaction to another vaccine.
If you have allergies to certain vaccines, don't set yourself up for another allergic reaction. Talk to your doc about hivrd to shortness of breath or swelling of the lips; THESE ARE TRUE REACTIONS and reason not to get the vaccination.View Thread
Cymbalta is good for depression; how long have you been on it? I'd give it at least six weeks. Anti-depressants take a long time to work.
That said, if you've given Cymbalta a good chance, there are other antidepressants and teyre are a lot of the, The one that has helped me is Celexa. but your doc knows you best.
Not much blood work can be done for things like CFS or fibromyalgia. This IS a board to complain on; lupus throws such a wrench into your life, so complain all you want. It's good for the soul@
'i don't know what else to do?" Well, starting to keep a diary is a good start, Keep track of what you at, and how you may feel. You may see a correlation between how you feel and food. But, lupus is a REAL disease. Just because you can't see it, makes it hard to win 'A BIT' of sympathy. I don't want sympathy from my family, but I'd at least like them to ARELView Thread
I don't understand, You say that most cases of SLS aren't progressive, but I did not receive the diagnosis until successive PFT showed the TLC and ________were decreasing on a CONSISTENT basis.
Currently taking CellCept and some days it''s all I can do to walk across a room. I'm trying to exercise and do so with the assistance of an exercise physiologit who knows how to maximize pulmonary gains without compromising osteonecrosis.
I see docs at National Jewish health in Denver who are considering adding theophilline to my regimen. But theophylline interacts with so many meds and I'm on a ton.View Thread
Dozzi, I have ringing in both ears that won't quit and is quite annoying at times, but I've learned to live with it. I had it check out and they said all was normal, just 'garden variety ringing in the ears!!(
This is the first time I've thought it could be related to lupus. The ENT doc who evaluated me, told me that it can happen, too, if the little cilia (the hairs in the ears) break. I don't know what that does, but apparently if affects the sound..View Thread
Lusatru, I like your pie analogy. The more people you have eating from the pie, the smaller the slice and with fewer people paint taxes, HOW is it going to be rounded?
I have some big doubts that I don't likel I like to give everything that comes down the pike a 'fair shot,' but it only stands to reason that more cannot be insured for the same amount of money and the quality stay the same, if not improved.
I don't have the money to raise my taxes (SSD) , and am chronically ill, so I know that my care costs a fair nickel.AnnieView Thread
yep, in NY, I'd say HSS is about the best. NYC is loaded with good places, but I know HSS to have some of the best. When I was first diagnosed with osteonecrosis, my rheumie said that if it got worse (which it did) that HSS was the place to go. I now live n Colorado Springs, so HSS is sort of out of the question for the time being!!
Dozzi, I didn't see this, sorry you haven't gotten any responses. I have a TENS unit, b ut it never caused and heart palpitations rapid heart rate. I guess I'd have it checked mechanical or by a physical therapist who is familiar with the settings.
They have a lot of different mdes and one of them can be misfiring? I'd like to say authoritatively, but mine hasn't given me problems. AnnieView Thread