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But I don't think there's anything I can say or do to make those gallons of fluid that are underneath your skin go away and no magic pill for your kidneys. I'll leave that up to the docs.
But the support piece. There are times when I feel like I can't or don't want to burden my husband any more, and now that he's been without a job for the better part of a year, those times are becoming more frequent. So, I have no choice but to reach out.
Is there a support group in your home town, at your church maybe? I'd imagine that your rheumie's office keeps some list of ladies who gather or an official LFA support group, or the local hospital social work department has an idea. Support group for people with chronic illnesses. Another organization that just came to mind is Meetup. They're an online organization and might have support groups in your area.
Can you talk to a counselor, priest friend? I'm nearly 3 times your age and am thinking of the things that helped me over humps throughout the years. But, keep coming back here. WebMD has some find groups and fine informational articles.View Thread


Ever realize how much generic keppra, ranitidine and vicodin look alike; but how vastly different their actions are? I occasionally need to check drugidentifier.com or something like that to identify my drugs, too!View Thread

What I find is a challenge is to make sure that I change the meds every year or so, so they're not expired if/when I need them!
I also just saw Lupy's post about "doing her pills." This is a sight as I'm surrounded by a shoebox, something to drink and my pills!View Thread

The swig of water is still the same (maybe two), but it's no longer 3 pills. How about (depending on the time of day, 10-14. As a nurse, I should know better than one or two swigs, but I like to challenge myself. Every now and then I do more. But I wouldn't be without my pill box, the big one I got from The Container Store, about the size of a fishing tackle! Not the little wimpy one from Walgreen's!View Thread

Are there cardio-protective and other benefits to being on 200 BID that aren't present with a dose of 200 daily?View Thread

I thought Plaquenil was good for it's cardio-protective benefits and I'll talk to my rheumie about my concerns that I should go back to the BID dosing.. Does anyone have any input?View Thread

Please listen to your coworker, but also listen to your conscience. You know what you need to do to keep yourself healthy (heart, lungs, etc). He, like my husband may have a feeling that you can coast through life, never taking care of yourself. Lupus is one of those diseases that doesn't grant you the luxury of taking the low road of never watching your diet (especially with your renal involvement), brushing your teeth, never exercising.
That's my unsolicited advice.View Thread

I ask about THEIR lives, lives without children, show interest in their work, what makes them tick, and at the end of the day, I don't sense any thought that I might have feelings that are worth honoring. Thanks so much for ackowledging.
Years ago when I had to have a hysterectomy, I confided my sadness in my boss (I'm a nurse). I've NEVER forgotten (nor doubt I will) her response, "it's a diseased organ.I It's got to go." Seemed so cold and still does, though I did have the surgery.View Thread

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