The Vitamin D is for immune health and low levels have been associated with heart disease and other cellular functions (I think cell wall strength). It also supports bone health, which if you're taking prednisone, can become compromised.
In lupus, the immune system is HYPERACTIVE against itself, but it still needs the support of vitamin d. Low levels of vitamin d have also been associated with type 2 diabetes. This is my understanding.View Thread
I mentioned the possible Vitamin D deficiency some years ago to my PCP and she was quick to put me on a supplement so I now take 2000 IU supplements daily. HOWEVER, I think the dosage is individual and determined by labwork.View Thread
"Getting disability is VERY difficult and it has become even more difficult recently. Odds are you will be summarily denied the first time no matter what. "
This is so true, ever so true. In these financial times, only so any cases can be approved: PERIOD. I recall when I was approved 10 years ago, I was told by one of my doctors that there was no way I'd be approved the first time around, and maybe I'd be approved the second time around if I had cancer.
With the push to reform entitlements, I still don't think that this program is endangered, but I feel the people who don't belong on it will be scrutinized more closely and participation in return to work programs made more a requirement.View Thread
That's so sad to hear that your physicians didn't 'play well together,' but I'm glad you're on now. My claim was approved after about 2 1/2 years; I had numerous medical problems, but I feel certain that the claim was granted on rheumatological basis.
I was initially denied. Then reapplied. I was denied again. At this point, I retained an attorney (at the ALJ stage) and it wasn't long (seemed like light years), before my attorney called and said that the attorney for the ALJ felt that my case would be won; would I accept an out of court settlement? So, I didn't need to do the whole ALJ thing.
But, to anyone trying, I'd recommend leaving a paper trail a mile lone (calls to your docs, etc) and documenting EVERYTHING. Keep a record or every med change, why, what side effects-if any- you noticed, etc. The devil is in the details.
The last phase (ALJ) I asked friends who had known me and seen how my condition had changed through the years from lupus-to write short letters of testimonials. I think these letters worked wonders. THey were personal, they hit home. One was even from my PCP, who was also a friend. He could comment on how I was no longer ablle to do a lot of things.
But, you need to convince disability how you've changed in your functioning.. This counts for a LOT. Your rheumatologist will know what kinds of things to address.View Thread
Unfortunately, Washington only has so much money and the burden of proof for your disability is hard. It's made even harder by the people who apply for a handout when they simply 'want' a handout; they don't necessarily NEED the help, nor do they qualify for it. That makes it harder for the rest of us.
The only time I've taken steroids for SLE is when I was first diagnosed in '92 and on occasion I've taken a dosepak (maybe once every two years).
In spite of not taking them much, I developed one side effect, osteonecrosis. From the SLE, itself or from the steroids I took when I was first diagnosed, I don't know. I also have a few blood disorders, so I'm really not sure if I'll ever know the cause of ON. AnnieView Thread
My experience: In Illinois, my path to receiving disability benefits seemed long. But, early on all the docs I'd seen wrote detailed letters indicating WHY they felt I was disabled. As detailed as possible. Some institutions required that I pay a medical records charge to get records copied; some did not.
There were several phases of adjudication and the first 2 phases I was denied benefits Then, I hired an attorney and it was at that stage, where you go in front of a judge (administrative law judge) that I got letters from friends whom I'd known for some time. The letters basically stated how I'd changed over the years from being vibrant to barely functioning,
I think those letters/testimonials were 'the ticket' and the 'case' was settled 'out of court.'View Thread
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