I would go with what Dr. Wallace says! I have always been told that if you get the bi-annual eye exams and visual field tests you should be okay. IF they detect any issues then they will stop the plaquenil and the damage can be reversed.
I am on Benlysta and it really helped me. There is a facebook page called Benlysta Buddies. There is a ton of information and can be very helpful in making your decision. Plus there are lots of people for support You should check it out
I also have lupus nephritis (this is my second go around with it) and it has started to get better thanks to starting Benlysta. I have Stage V membranous glomuleronephritis. do you know which stage you have? If you have Stage III or IV Benlysta might not work. Are you taking BP meds for your nephritis? The reason I ask is because I had a reaction to them which manifested as severe shooting nerve pain in my arms, legs and feet. Have you had a kidney biopsy yet? What is your doctor using to treat your nephritis? Hang in there! It gets better!
Are you on the Wolfpack oldies facebook group? Everyone is there from the old gang! It's called Lupus Wolfpack (Oldies but Goodies) if you want to join let me know. you cana email me at email@example.com and I will give you the details.
There is also a fb group called Benlysta Buddies that you might want to join to tell your story with Benlysta for all the newbies!
I have been on Benlysta since August for my stage V lupus nephritis and it seem to be working very well. My kidney numbers have gone way down since starting it. the nly problem is the cost! I don't qualify for any assistance programs. Iam too poor to be rich and to rich to be poor!!! But better broke than dead!
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