I just wanted to let you know that there are several really good lupus support groups on facebook too. This board has been really slow lately so if you need some immediate feedback you should look into them. A few of the groups are: Awareness Matter, Hot chicks with lupus, Molly's Fund, Lupus Warriors and several lupus foundation groups too
I am sorry you have been having such a rough time! I had to go on disability 12 years ago because I just couldn't handle working any more. Even if you don't want to go on disability, I highly recommend that you at least apply for it. The first time you apply for SSDI, you will most certainly get denied. If you apply again at another time, they will have a record of your first application and you may be more likely to get approved.There is no shame in being on disability, you have to take care of yourself first and foremost! You can always go back to work once you get your lupus under control.
Does your company offer short term disability or long term disability inyour benefits? When it comes time to renew your benefits, you might want to get both. If you have at least short term disability, you cannot be fired for taking a short term leave.
I hope things start to go your way soon! Hang in there and take care of you!!!
Everyone is different. I know of some other people who, like you, think that Benlysta is the best thing ever while others have not had such good luck with the treatment. So far I have not noticed much difference in how I feel but I have only had the first 3 loading doses.