There are so many different types of aches and pains associated with lupus that it can be hard to differentiate which is causing what. I would suggest that you call your doctor and make an appointment! Better safe than sorry!
I hope you get the answers you are looking for! Good luck and please let us know what happens!
This board is a great resource to help people understand and cope with lupus. It has always been my intent to do my best to help people and to make sure that the information I give is accurate. There are, however, times when I have to defend myself from an unwarranted attack by someone who knows not of whcih they speak.
That being said, there are several causes for kidney/flank pain. Pyelonephritis (kindey infection) being one of them.
All the lupus literature and web resources say that Lupus nephritis does not cause pain. Which is why laboratory tests( blood and urine and often times a kidney biopsy) are needed for a definitive diagnosis. That is not just my opinion, it is a documented fact.
There are other conditions that accompany lupus that can cause pain in many areas of the body, including the lower back/flank such as fibromyalgia, myositis, vasculitis to name a few.
Have you asked your doctor, or has your doctor suggested that you get a kidney biopsy to eliminate or diagnose lupus nephrits and to allay your fears that you might have it?
A Kidney biopsy however is not something to be taken lightly. It can sometimes be a dangerous procedure. When I had mine, I was hospitalized for three weeks after it due to many complications stemming from the procedure. Not the least of which being severe internal bleeding!!! The radiologist knicked my artery and I nearly bled to death!!!
If she is having pain in her low back, it is most likely a muscle strain, kidney infection or kidney stone. There is no pain associated with lupus nephritis. She would need to see the doctor and get a urinalysis done to rule out infection.
It is definitely possible to figure out that you have more symptoms than originally thought when reading about lupus. Things you thought were normal for you are actually not! So the more she reads, the more aware she may become of things that have been affecting her. So in fact, she may actually have these things she is reading about. It's like a puzzle and once you start putting all the pieces together an overall picture forms.
Depression with a lupus diagnosis is very common. It's hard not to be depressed when you feel terrible all the time. I believe that one must go through the grieving process when they learn that they have a chronic disease like lupus. Grieving for the loss of your good health is one part of the process. How each individual deals with their own lupus differs from person to person. I chose to have a positive attitude and deal with each hurdle as it comes. So far this strategy has worked very well for me.
There is no one set treatment for lupus. Everyone experiences it differentlyThere are many different meds we lupies take depending on each individual case, the severity and organs affected.
First of all, there is really no need for your bad atitiude on this board. If you want to take your anger out on something or someone, by all means, take it somewhere else.
If you actually read my post, you would have seen that I was talking about FLANK PAIN associated with lupus nephritis. Many people come to this board saying that they have pain in the lower back, on one side and ask if it is lupus kidney involvement. To which I reply: there is no pain associated with lupus nephritis.
I don't know what lupus patients struggle with on a daily basis??? ARE YOU KIDDING ME?
I was diagnosed with lupus for 27 years ago and have been through just about everything there is to go through. I also have several other conditions secondary to lupus. I've had major organ involvement including stage V (that's the roman numeral for 5) lupus nephritis, I went thru 3 years of cytoxan therapy.
Believe me, I know so much more about lupus and the pain associated with it than you, it would make your head spin!
For you, a stranger, to doubt my credibility on this message board is out of line. I have been here, on this WebMD board, for over 10 years helping people.
But seriously...It is very difficult to explain the pain you are feeling to someone else. Pain is subjective. For one person a pain can feel like the world is ending and for another, that same pain is not so bad.
For example. I was living with two ruptured disks in my neck for a couple of years before I actually had surgery. My friend ruptured the same disks and had to have surgery within two days of the injury because, to her, the pain was completely intolerable.
I like to use humor to explain my pain. So when I joke about pulling your lip over your head, it creates a very vivid image and enables a person to imagine the pain it would cause to do so.
If someone you love is in pain, there are subtle clues to look for. People close to me can usually tell when I am hurting even when I "look good." They tell me that I lose the sparkle in my eyes. When the sparkle is gone, they know to stay away from me!!! Because when someone is in pain, their sense of humor and patience are usually the first to go.
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