there is a space at the top of the new discussion for a title then the large box underneath it for the post. You have to have a title in the title bar otherwise you will get the error message that you received.
see a lot of people posting that they have flank pain in their lower back and think it is lupus kidney involvement (aka lupus nephritis.) I just wanted to clarify that there is no pain associated with lupus nephritis, which is why diagnosing it is so very difficult. If you have kidney involvement, one of the first clues is if your urinalysis shows increased protein in your urine. A kidney biopsy is used to diagnose lupus nephritis.
If you have lower flank pain in your back it could be a kidney infection (aka pylonephritis) and you should have it treated ASAP so there isx no damage to your kidneys.
Getting disability is VERY difficult and it has become even more difficult recently. Odds are you will be summarily denied the first time no matter what. But you might want oa apply anyway. so, the second time you apply, there will be a a record of it. It is a long arduous process, so you mght want to start now. Call your local social security office or go online to get all the forms you need.
So many new people keep resonding to REALLY OLD discussions like the CALLING ALL LUPIES and "hives with lupus" because they are in the "popular discussions" box on the main screen. While they may be popular, they may no longer be relevant.
Before responding to a post it may help to look at how old it is. You can tell by looking at the date of the very first post in a thread. If you have something to add that's fine. But if you want to ask a new question I would suggest starting a new discussion thread.
I am glad you are able to control your lupus with diet. But, immune boosting vitamins are normally a big no no with lupus. We need to stay away from anything that boosts the immune system. When they treat lupus, they try to supress the immune system so taking immune boosters is counter productive.
I went for years refusing to take steroids but when my lupus attacked my kidneys, I had no choice but to take them. The side effects of steroids are terrible. I have already had cataract surgery and am osteopenic (pre osteoporisis) but I don't know that I have ever heard of anyone dying from taking steroids.
But if whatever you are doing works for you, more power to yaou! Just as a rule immune boosters are not the way to go for lupus patients