Welcome to the group! Web MD has good information, but you can find lots more at the Lupus Foundation. There may also be lupus support groups in your area. We have them through the Lupus Alliance of Queen and Long Island.
You need to learn to manage yourself by pacing yourself and accepting support from friends and family when needed. At times you will need to "give in" to your body in order to keep your strength up. You need to listen to your body and act accordingly. Keep a log of your symptoms and feelings so you can share them with your doctor. You need to be open with your doc and tell him everything.If you aren't comfortable with this one, find one you are comfortable with then keep him or her informed of everything. I have a wonderful one I have been dealing with since diagnosis 15 years ago. Good luck and keep posting here- others will answer your questions.View Thread
I was diagnosed with it before my Lupus diagnosis and as soon as they got me onto Medrol, the carpal tunnel disappeared. I still have problems when I am in a flare, but nothing like before steroids.View Thread
Lupus can affect ALL parts of the body. Just because for most it is joints, dermatologic or kidneys don't just assume it can't be part of the lupus. I had I don't know how many procedures including gall bladder removal for elevated liver enzymes (for years) until after my lupus was diagnosed, which wasn't until I was in my 50's. Then my gastroenterologist insisted on a liver biopsy only to find I have autoimmune hepatitis. Now I see a liver specialist regularly and we have it under control. You must listen to you body and ask for help. Your doc sounds good, so be honest with him and they will see you through this. What you have is more common than you think-you just don't hear about it as often. Amy, you'll be in my prayers. You will get through this!View Thread
You aren't going crazy. The "fog" is definitely a lupus symptom, though I have friends with other autoimmune issues with the same fog. You should speak with your rheumatologist about this and I am sure there are things which can be done to help you out of the deep depression you also seem to have. You must be honest with your doctors and perhaps keeping a journal of the problems would help explain it to them more clearly. I have been blessed to not have a serious case of "fog" and although my SLE has never gone to remission, it is under control. I, too have other autoimmune issues and having more than one DX is very common among us. See someone soon about your issues. Talking about them is definitely a help. We here are here for you, but maybe there is a support group near you which would be another way to help yourself. You are not crazy!!!View Thread
I was diagnosed in 1997 after probably having Lupus since childhood (I was 54 at dx). Have lots of other problems also, but my opthomologist recently told me that I have rosacea on my eyelids. I do also have it on my face. My eyes look red also from dry eye problems for which I use Restasis. Don't know if that's any help-I also use Patanol, a prescription allergy eye drop when allergy season is high (like now for all the ragweed and dust in the air in the northeast). Wishing you good luck!View Thread