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about 15 years ago, doctors had been telling me since I was a child that the pains weren't really there (I'm 70 now). I even had my gall bladder removed as a result. After the lupus diagnosis I was found to also have lupoid hepatitis, hypothyroid and most recently gastroparesis which was causing most of my stomach problems. That last one was only diagnosed last year, so there were a bunch of problems in-between. You really have to find a doctor you have confidence in and work with that person. For support, we are here and willing to listen and make suggestions. I know I'm feeling a bit like you right now with back fractures from being on steroids too long. Good luck and just put one foot in front of the other each day. It WILL get better-maybe not as quickly as you want, but it will!View Thread

Any ideas for me? I do take lots of calcium, 50,000 mg of vitamin D, magnesium and other vitamins. Can't get off the Medrol because I can't take the new meds with the hepatitis.View Thread

I do know what you mean about only letting people see the "good you" and not when you are really down. Right now I'm fighting the pain of a vertebra fracture which I was blessed with simply by getting off the MRI table too fast. Hopefully the orthopedist will have a suggestion today when I see him. I'm tired of sleeping sitting up in a chair, but bed is out of the question!
As you say,with love patience and faith we will make it through all these bumps along the way!View Thread


menopause and I've still never achieved remission (I've been diagnosed for almost 20 years). My disease always seems to be active. It didn't make it any worse or any better.
Wish it had disappeared with menopause!View Thread

Good luck and hope you're feeling better soon. Are you seeing a rheumatologist? You should be.
NancyView Thread
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