Participants are being sought for a research study regarding the treatment of multiple sclerosis, rheumatoid arthritis, and systemic lupus erythematosus. Researchers from California Northstate University's College of Pharmacy, located in Rancho Cordova, CA, are looking for participants for their research study. For this study, they are looking to enroll about 100 subjects who are 18 years old or older; have been diagnosed with either multiple sclerosis, rheumatoid arthritis, or systemic lupus erythematosus; have been regularly taking medications for their condition over at least the past six months; and are willing and able to provide their consent to participate in this online survey study. If you volunteer to take part in this study, you will be asked to complete an anonymous on-line survey about your preferences for different treatment options for your condition. In addition, you will be asked to provide some basic demographic information and information regarding your past experiences with treating your disease. There are no questions that will specifically identify you. The survey will take approximately 25 minutes to complete and all responses will be kept strictly confidential. Your encrypted answers to the survey questions will be saved on a password-protected computer server; and will never be associated with you. If you are interested in participating, please click on the link below or copy it into your browser:http://outpharmacy.co1.qualtrics.com/SE/?SID=SV_bJbFTgzgL2XcZhPView Thread
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My name is Jennifer Struikenkamp. I am from the Netherlands and I have Lupus. I also have a lupus awareness site on facebook and I have been trying to post the video's of Speaking of Lupus with Christine Miserandino individualy on this site, because I find them to be very educational and sincere. I have not been able to post them individualy, because the link keep sending me to other video's. Is there a way to make facebook/share links so I can post them?
This pose helps to strengthen the hips and functional core. The internal rotation of the femur bones are important to turn on the functional core muscles in the body - to help support the spine and the overall structure. It involves the upper inner thighs and transverse abs, helping you to move dynamically. It is also good for knee issues by helping teach the knees proper tracking.[br>[br>Benefits: Strengthens the supporting muscles of the major joints, like shoulders, hips, knees, ankles -- Develops core strength -- Strengthens quads and gluteals -- Helps protect knee joint, by building stability-- Builds heat in the body -- Opens shoulders and chest --[br>Improves breathing.[br>[br>Warnings: Those with knee problems should begin against a wall -- Severe back problems -- Recent ankle surgery.View Thread
Please check this out, curcumin has been used for centuries in China and India for a wide variety of ailments. I will be writing more about this in my next newsletter, until then please share this info.View Thread
This is an novel treatment strategy that involves blocking toll like receptors. There is good research to suggest that in Lupus Toll like receptors are inappropriately activated by anti-nuclear antibodies which are complexed with self RNA or DNA. Blocking Toll like receptors may help prevent the immune activation and resultant inflammatory response. In fact, there is good evidence that medications such as plaquenil, which have been in use for lupus for decades act via their effects on toll like receptors. This new generation of toll like receptor blockers (there are a few of these medications currently in clinical trials) promise to be better and potentially safer, which is why they are interesting. Of course, the information that is highlighted in this particular report is still very early in testing and it remains to be seen if the effects can be maintained in human trials.View Thread
Here is a link that discusses most of the updated information we reviewed at the American College of Rheumatology meeting recently. As you can see, several drugs including Belimumab, epratuzumab, abatacept and laquinimod are being investigated extensively and so far appear to have promising results in the treatment of SLE.
There is no single blood test for diagnosing lupus. Systemic Lupus Erythematosis (SLE) is diagnosed using 11 criteria. IF you have 4 out of 11 it is likely you have lupus.
Face rash, which doctors call a malar rash, that is butterfly shaped and covers the bridge of the nose and spreads across the cheeks
Scaly rash, called a discoid rash, which appears as raised, scaly patches
Sun-related rash, which appears after exposure to sunlight
Mouth sores, which are usually painless
Joint pain and swelling that occurs in two or more joints
Swelling of the linings around the lungs or the heart
A neurological disorder, such as seizures or psychosis
Low blood counts, such as low red blood count, low platelet count (thrombocytopenia), or a low white cell count (leukopenia)
Positive antinuclear antibody tests, which indicate that you may have an autoimmune disease
Other positive blood tests that may indicate an autoimmune disease, such as a positive double-stranded anti-DNA test, positive anti-Sm test, positive anti-phospholipid antibody test or false-positive syphilis test
Connect with other Hoosiers affected by lupus and join the Alliance for Lupus Research in the quest to prevent, treat and cure lupus at 10am on Saturday, September 10, 2011 for the 3rd Annual Indianapolis Walk With Us to Cure Lupus at the Michael A. Carroll Track & Soccer Stadium on the IUPUI campus.
Alliance for Lupus Research (ALR) is dedicated to funding biomedical research to find better treatments, and ultimately, to prevent and cure systemic lupus erythematosis (lupus; sle). ALR is the largest provider of private funding for lupus research in the country; and was founded in 1999 by Robert Wood Johnson IV, a member of the founding family of the Johnson and Johnson Company. Since its founding, ALR has given more money to lupus research than any non-governmental agency in the world; to date $60 million has been committed.
Check in for the 3rd Annual Indianapolis Walk With Us to Cure Lupus starts at 9:00 AM with the walk starting at 10:00 AM on Saturday, September 10th. 100% of your contributions to the ALR go directly to support lupus research programs. Register at walk.lupusresearch.org , or call 866.925.5257 for more information.View Thread
Joint and muscle pain is often the first sign of lupus, which is hard to explain in an image, but what about the butterfly rash that's associated with Lupus? What does Raynauds, the swelling & darkening of fingers, look like?
The Lupus Alliance of America is a group of agencies that have come together for the express purpose of providing needed services to those affected by lupus within their local communities. Our mission is "To ensure the delivery of services to those affected by lupus through affiliate members and other agencies and to fund research efforts." The Lupus Alliance of America serves to support those individuals, organizations and agencies that are involved in research to find a cure for lupus or to improve treatment of the disease. This support includes providing money for such research and the dissemination of information that will help to advance those efforts. The Lupus Alliance of America:
Promotes programs of public awareness and education about lupus.
Promotes, through Affiliates of the Corporation, patient education programs and services for those affected by lupus.
Works with health professionals to improve the standards of diagnosis, care, services and treatment of those suffering from lupus.
Serves as an advocate for those affected by lupus.
Supports research into the causes, treatment and cure of lupus.
The Lupus Alliance of America is working to build a brighter future for all lupus patients and their families.View Thread
You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.
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