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Thank you!View Thread
"You may not know what to expect because symptoms can be nonexistent one day and hit full force the next -- leaving you guessing as to when you'll feel your best. But there are a few things that you can tell your family to count on, like fatigue and flare-ups."
This story includes how one mother explained her RA pain to her 10 year old daughter. If a 10 yr old can understand RA pain, hopefully Lupus pain can can also be understood by child and adult, alike.
How do you help family or friends understand what you're going through? View Thread
Check out this Slideshow: 10 Daily Habits to Reduce Chronic Pain for a few ideas that may help.
Have you incorporated a little exercise into your schedule to help with pain? What other ways have you found to reduce chronic pain? Please share your best tips with us below.
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Docs GalView Thread
All you have to do to start a new paragraph is hit the enter key twice then start writing again.
Thanks for your cooperation!
LupylisaView Thread
Digests give you all the new posts for your community for the past 24 hours and even link you up directly to posts from our experts.
Read a little more about email digests and how to sign up for them , and then start getting your own digests!
The WebMD Community StaffView Thread
WebMD has a slideshow with Fibro-friendly exercises and simple stretches to help ease your pain. By making simple exercise modifications, you can boost your energy, decrease pain and stiffness, and start to be more active again.
Have you used exercise to help with your fibro pain? Share what has worked and what hasn't with us here.
Want more exercise tips? Get your pain under control and your body in shape with expert advice and member support on our Fitness & Exercise Community .View Thread
http://www.medicinenet.com/colesevelam-oral/article.htmView Thread
Thank you for your advise. I have another question. My Dr. took me off my meds. I have felt more more but it seems to be different. It seems to travel. First it's in my hands then it goes to me knee then some where else. Last night for the first time I felt heat with it. It felt like my hand was on fire.My dizzy spells seem to happen more. She wants me to see a Nero, Is this normal as well?? I too am always tired but can't seem to sleep. I feel worse when I sit for a bit then try to get up. More so after I get home from work. Just looking for advise. Thank You for your help. RSView Thread
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AndieView Thread
Here are few tips to get the best response to your question on the Lupus Community:
- If you have a question, please post it as a new discussion...being specific in your title as to your subject matter.
- The post will be read by the Community Members, by the Moderator (me), and by our Health Expert, Dr. Zelman. You will receive a response from one or all of us.
- If you still have questions or would like the Health Expert's direct advice, simply state that in a polite reply.
- If the Expert does not respond then it is probably due to the position it puts him in by offering a "second opinion".
- Your best bet THEN would be to repost your question omitting any reference to what your regular doctor may have advised. This way Dr. Zelman is not put in the position of contradicting another professional's opinion.
Dr. Zelman is somewhat particular about which questions/posts he responds to. His purpose for this is to provide a "teaching experience".
Dr. Z does check the board several times a week, however he will not respond to any questions that might put him in the position of providing a second opinion to someone's regular physician. This is to protect everyone involved.
Without examining a patient himself, there is no way Dr. Z could give an accurate opinion, but he can provide tips on what may help, or what questions you should ask your doctor.
There may be situations where a new visitor may have had a bad experience somewhere else with receiving advice that wasn't well grounded with experience. In that case they may be looking for an actual MD just for the trust factor.
However, a polite response or a "thanks, but I'd also like to hear what the Health Expert's opinion is" would suffice.

Member experiences are very valuable to understand real life coping techniques that have worked (or not worked) for an actual individual...rather than just reading a bunch of medical jargon.
I hope that helps clarify. Just remember that we are a community. We all have rough days, but we are still here to support and be supported. It's a give and take, and respect is mandatory for your post to remain showing.
There you have it! Now go ahead an post away!! (Just scroll to the top & find the "Post Now" button & click "Discussion")
Yours In Health,
~Andie, Community ModeratorView Thread
If you have lower flank pain in your back it could be a kidney infection (aka pylonephritis) and you should have it treated ASAP so there isx no damage to your kidneys.
LupylisaView Thread
Some symptoms of lupus are "soft" (joint pain, fatigue...) but others are more suggestive like protein in urine, pleurisy, abnl blood cells and carry more weight to diagnosis.
Tricky but not overly mysterious.View Thread
For those with RA, alternative techniques may let you have greater control of your pain and activities. Some of the topics are:
- Natural Treatments for Rheumatoid Arthritis
- Can Magnets Improve Rheumatoid Arthritis Symptoms?
- Mind/Body Therapies for Rheumatoid Arthritis - Like visualization, Tai Chi, Acupuncture or Meditation
Lupus for the most part is not cured but suppressed and there may be times when treatment may need to be increased. The addition of other medications to control the disease is often the only way to keep the steroid dosage as low as possible.
David Zelman MDView Thread
So many new people keep resonding to REALLY OLD discussions like the CALLING ALL LUPIES and "hives with lupus" because they are in the "popular discussions" box on the main screen. While they may be popular, they may no longer be relevant.
Before responding to a post it may help to look at how old it is. You can tell by looking at the date of the very first post in a thread. If you have something to add that's fine. But if you want to ask a new question I would suggest starting a new discussion thread.
LupylisaView Thread
This is not easy to show. In arguable cases some may choose to get an attorney but a well written statement from your treating MD will more likely tip the balance. Since this is outside the scope of usual care your MD may charge for a report of this nature. Having your records sent however should not cost anymore than a copying charge.
David Zelman MDView Thread
To do this, just hit the ENTER key twice, then start typing again. It's really quite simple!!!
Thank you for your cooperation!!!
LupylisaView Thread
In order to minimize the adverse reactions (which are numerous-- check this out on Webmd site) you should:
1. Always follow your MD's advice on dosage, do not manage this on your own. If it is possible, your doctor may prescribe other medications to allow your dose to be as low as possible to control the disease. This might include "alternate day" regimens, use of skin applied ( topical) steroids for skin disease or use of other "steroid sparing" medications.
2. Take measures to minimize weight gain including exercise and watching your calories.
3. Keep sodium intake low and potassium intake high. Often a diet that is generous in fruits and vegetables will accomplish this.
4. Take Vit D 1000 IU daily along with calcium 1000-1500 mg a day. Your physician may also sometimes prescribe a medicine to help protect your bones.
5. Since steroids make you more susceptible to infection, report high fever T> 102 degrees to your physician. Other symptoms such as severe cough, painful urination might also prompt a call to your MD
6. Do not stop taking steroids suddenly especially if you have been taking them for more than 2 months.
7. Be an educated healthcare consumer and take the time to learn about steroid side effects so that you can report them to you doctor as soon as possible.
David Zelman, MDView Thread
I act all excited, then ask (using my OMG maybe there is a cure voice): does it boost the immune system?
Their answer is usually YES, IT DOES!!!
To which I reply (using my sad, there is no cure for lupus voice)
OH, NO! Immune boosters are exactly the opposite of what I need.
It usually works to shut them down in their tracks especially if they are trying to sell it to you!View Thread
Staying Strong,
Ezra
P.S. The blogging was the best part a lot of the time. What happen?View Thread
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