See All
Preferences
My Communities
My Discussions
My Email Digests
View Thread
I have already told this to my doctor, but he says it sometimes happens to headache sufferers.
Any suggestionsView Thread
View Thread
My question is, for anyone suffering as well, how do you manage?
My dad always thought the headaches/migraines came from me not being able to see well, I need glasses/contacts, and so when I started wearing contacts we thought the headaches would go away. And what do you know, they didn't. I just want to know if there is a solution, I'm tired of not being able to live my life.View Thread
I have had done all the possible tests that one could do with several doctors and none of them have been able to find anything and all of them (whether they are generalists, CFS or lyme or infectious disease specialists) said they've never seen anything like this and can't help me. No serious doctor has suggested that it's psychological and a psychological cause simply doesn't seem likely to me.
I've also done a lot of research myself and the things that come closest are:
-CFS/ME: but I almost never feel fatigued or tired so that basically excludes it (I've also seen several CFS specialists who all say that my symptom(s) doesn't fit)
- Lyme: all tests negative and I don't have any of the other symptoms. Antibiotics showed no effect (not even the 'herxing' that many Lymies seem to get).
- Yeast infection: I've changed my diet to very low carbs for over 6 months and that hasn't changed anything (no herxing here either).
- Some kind of a latent viral infection that could have been reactivated (blood tests show I had EBV and HHV6 in the past but then again most of the population have had those).
I've been on all kinds of supplements (mainly multivitamins and mitochondrial support such as CoQ10, NADH) which haven't made a major difference either.
I've tried several antibiotics and antivirals (both conventional and alternative medicine) which haven't made a difference either.
I've changed my lifestyle, moved flats and seen whether it changes when I travel. All of these have had no impact on my symptoms.
If anyone has any clues or has ever been through something similar, I would very much appreciate your help!
Thank you very much.View Thread
Triptans like Imatrex- gives me chest pain
Beta blockers- cuz I have chronic bronchitus
I have tried massive doses of ibuprophen (Dr. said it works just as good as fiorinal with codiene-hah- big lie)
Neurontin-or it's similar gabapentin didn't work
amyltriptaline made me gain weight and I'm already 100 pounds overweight! AND it didn't prevent or stop my migraines.
lyrica made me so sleepy all I wanted to do was sleep.
Cymbalta made me depressed- severely & tired & angry.
The only thing that has ever taken my migraines 100% away is the fiorinal with codiene, but it is being discontinued as a migraine med and now I'm in terrible pain- what are they going to do with those of us that can't take other meds because of the side effect or existing medical problems.
I have glaucoma -very bad so, I can't take anything that has eye pressure or blurry as a side effect.
I have chronic bronchitus
I can't take anything that can make you depressed or anxious.
I have an ulcer
is there ANYTHING that will 100% take away my migraines that I CAN take- keeping my limitations in mind- HELP! I want my life back! I have to lie in bed with ice on my head- for days at a time. I can't even watch TV or cook- my migraines are level 9 1/2 (10 I consider to be passing out). Thanks. P.S. I have tried feverfew, vitamins, staying away from chocolate, cheese & tomatoes.I really don't understand why I'm being taken off something that has worked for me for 20 years! thanksView Thread
This is about my 42yr. old daughter and what happened to her. Abt Sept. this yr. my daughter started having severe, and shocking headaches. After exhausting all types of MRI's, ct scans, etc. and seeing a neurologist there was no clear diagnosis as to what was causing her headaches. Very recently she was referred to a neurosurgeon in TX and we all went to that appt. last week. The new dr. looked at these tests on the computer and said there is a blockage on one side where this vein does not get adequate blood supply. In fact he said that it looked like it was not open at all. At that appt. just last week, he scheduled her for brain surgery for this week on 12-12-12 in the Med Center in Houston. This dr. is the head of the neurosurgery and only sees patients once a week. He is also a professor on the other days.
After the surgery was done he told us that the vein on the one side of her brain was so pinched closed that she would have died if it had not been caught so soon. In other words, a blood clot would kill her if he had not found the REAL problem. We were all shocked and scared.
I have to say that my daughter just came home after 3 days in the hospital. Amazing!
The bottom line to all of you that get headaches is if you get a headache that is the most horrific and you never had them please go to the ER and keep pursuing whatever is causing your headaches. Originally, the first 2 drs. thought that she had migraines and or tension headaches and that was not the cause at all.
I hope that his will be of some help to you all that are just getting headaches and have not been fully diagnosed by your own drs.
As for my headaches they are migraines and tension ones and they drive me crazy. I take 2 different muscle relaxers and lexapro, sumatriptan, and have pain mgt. dr. that prescribes methadone a total of 80 millagrams in one day. My headaches started when I was a teen, but later in my 20's, I was told that I had TMJ and the oral surgeons that I saw all told me that I needed to have total jaw joint replacement. After 6 major jaw surgeries I am left in chronic pain. The last jaw surgery was in 1995 in Dallas. That surgery lasted 13 hrs. long. When I looked at my face I looked like someone beat the tar out of my face. It was black and blue and very swollen. All that I can say in my case is that I was told originally that if I had jaw surgery my headaches would go away. Well the rest is history. They just got worse.
If any of you have the most severe, horrific headache and never had one before like that please go to the ER and then follow up with the appropiate drs.. I can assure you in my daughter's case it saved her life. That is what her surgeon told her.
Take Care,
meaningfulc1952View Thread
I have an undiagnosed condition which started three years ago, in December 2009. My family doctor doesn't take me seriously, so I am switching to another doctor soon. I'm male, 26 years old, non-smoker & non-drinker. Blood pressure on average 130/80, pulse rate around 70. I am 6 foot 1 tall, and weigh around 214 pounds (97 kg).
My symptoms:
- Head pressure (especially around the temples)
- Feeling my heartbeat pounding in my head (i don't hear it, but i definitely feel it)
- Massive eye floaters in both eyes (always present)
- Light sensitivity (always present)
- Slight blurry vision from time to time (depending on the severity of the "head pressure")
- Eye pain (also depending on the severity of the "head pressure")
What makes it worse:
- When I eat something very salty
- When I am very nervous, or very angry
What makes it better:
- When I press on my temples
- When I tie a piece of cloth around my head
- Diazepam 5mg
Worth mentioning:
- No fatigue (i have a lot of strength & energy)
- No appetite loss
- No sleep problems
A detailed history of my condition:
My problem began in December 2009 as just a strange feeling in my head. I started to literally feel my pulse pounding inside my head. This was accompanied by a feeling of pressure in the head, especially around the temples and around the eyes. It felt like extremely high blood pressure, but only in the head. I ignored all of this, thinking it's something that will go away quickly, but I was wrong.
After a couple of months, in the spring of 2010, the head pressure decreased somewhat, but then I began to have eye problems. There was a dull tension-type pain, first in my right eye, then in my left eye. This type of eye pain is very difficult to describe: A strong tension/pressure type of pain, which feels exactly like the pressure in the entire head. This lasted for several days, and then comes the worst part: massive eye floaters in both eyes, accompanied with light sensitivity. The eye pain went away, but the floaters & light sensitivity remained, as well as the head pressure. The floaters & light sensitivity are always present, 24/7, so it's definitely not a migraine.
The problem "stablized" in the summer of 2010, and remained very stable or "tolerable" I should say. Head pressure reduced by more than 50%, no eye pain, and only 5 or 6 floaters. Then in October 2012, for unexplained reasons, the whole thing came back with a punch. The pulse pounding in the head, the head pressure, and the eye pain all increased about threefold. Then a few days later, new eye floaters came along (more than 10 new floaters!). Now the whole thing is somewhat stable, but definitely not as good as it was before.
Why was it "ok" for more than two years, and then came back like this? The only thing I can think of is bodybuilding. In October 2012 I began to lift weights, mostly benchpress, and about a week after that, the problems began to intensify. This is the only thing I can think of that might have played a role.
Here are the exams I have had done in the past few months:
- Extensive blood work, including TSH test (thyroid function): all clear, except for somewhat high cholesterol (255)
- Abdominal ultrasound: completely normal
- Ophthalmoscopy with dilated pupils: no retinal tears, no holes, no damaged blood vessels
- VEP (Visual Evoked Potential) test: completely normal
- Carotid doppler ultrasound: completely normal (I really insisted on the carotid doppler ultrasound, because of the feeling of high blood pressure in the head.)
Second part coming up...View Thread
my mother age 65 has a problem of continue headache and sparking seen in eyesView Thread
thank youView Thread
thank youView Thread
I don't know what to do with what is going on. Should I make an appointment to see my doctor to change my medication? It is getting very annoying having headaches everyday or two.
Some advice would be welcomed.
Thanks,
Laura
View Thread
I don't know what to do with what is going on. Should I make an appointment to see my doctor to change my medication? It is getting very annoying having headaches everyday or two.
Some advice would be welcomed.
Thanks,
Laura
View Thread
Thanks for your time..
LisaView Thread
I've been suffering from migraines for about 18 years, and after being given various abortive medications that have about a 65% chance of working, I finally visited a neurologist to see about preventatives. My neurologist put me on Verapamil, 40 mg, once a day. At my next check-up, which was about a month after, she decided to up the dosage to 40 mg twice a day because the amount of migraines I got during the month did not change at all.
Two questions..
1. Has anyone else been on Verapamil for their migraines and had it work? If so, about how long did it take to really take effect?
2. Does Verapamil seem to effect menstrual cycles? I have been on BC for almost 7 years, and my period has ALWAYS come on a Saturday. I would say out of the 7 years, it has only come a handful of times on a Friday and maybe once or twice on a Sunday. Last month was the first time I got my period being on the Verapamil, and it came late (as in on a Sunday, not a Saturday). This is the second month I have been on the new medication, and I am supposed to be getting my period today, but it has not arrived yet. The only change I have made in my routine has been the new medication. I am not overly stressed, I have not been ill, I have normal BMI, and I take the BC at the same time every single day. The only thing I can think of is that the Verapamil has some effect on my monthly cycle, though my doctor never mentioned this to me, and I have not really found anything online about any side effects Verapamil may have regarding that. So I'm really at a loss.
Thank you!View Thread
I have been suffering from bilateral eye pain and frontal head pain for over 3 years. This constant, static, intractable pain has become totally disabling and I've had to completely withdraw from college and almost all other activities. I have literally seen over 100 doctors all over the United States including Ophthalmologists, Neuro-Ophthalmologists, Neurologists, Neurosurgeons, NeuroRadiologists, and Cardiologists. Several doctors have speculated that I have New Daily Persistent Headaches. Other doctors say that my diagnosis is Idiopathic Intracranial Hypertension. I am 22 years old and I'm looking for ANY information that would lead to the resolution of the pain I experience. I've been blessed with a loving family that supports me and cares deeply for me. My father is a physician and has offered a $50,000 reward for information or diagnosis or referral leading to the resolution of the pain I experience.
here is a link to a website my father and I constructed which has my full medical history
https://sites.google.com/site/ineedadiagnosis/
Despite the burden of constant pain, I will never stop fighting and searching for an answerView Thread
See Related Pain Management Communities
Women's Health Newsletter
Find out what women really need.
Helpful Tips
Helpful Resources
Related News
Related Drug Reviews
- Drug Name User Reviews
Report Problems to the
Food and Drug Administration
You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.
For more information, visit the Duke Health Pain Disorders Center
Other Migraines/Headaches Information
More Related Communities
The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatments or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service, or treatment.
Do not consider WebMD User-generated content as medical advice. Never delay or disregard seeking professional medical advice from your doctor or other qualified healthcare provider because of something you have read on WebMD. You should always speak with your doctor before you start, stop, or change any prescribed part of your care plan or treatment. WebMD understands that reading individual, real-life experiences can be a helpful resource, but it is never a substitute for professional medical advice, diagnosis, or treatment from a qualified health care provider. If you think you may have a medical emergency, call your doctor or dial 911 immediately.
Health Solutions From Our Sponsors
©2005-2013 WebMD, LLC. All rights reserved.
WebMD does not provide medical advice, diagnosis or treatment. See additional information.

