Hi all - just an update with my results using Petadolex (history of 15 - 25 migraines each and every month).
I started taking Petadolex in April 2013. In March I had 21 migraines (normal); in May, I had 18 migraines (still within normal for me). Skip ahead to August - I only had 11 migraines!! Not only that, but my migraines have stopped running on for up to 8 days in a row. Now I have a maximum of 2 days running with each migraine.
Granted this supplement took a long time to work for me (4 months), but I was determined to give it a really good try. Yesterday I had a doctor appointment and the doctor wasn't surprised that I was having such a good outcome with the supplement. He has a few other patients with acute chronic migraines, like me, that are having just as good results.
So, I am thrilled to have so many days without a migraine - I'm able to get more done, exercise, and have a 'normal' life. On the days I do have a migraine, it is the same as always - but knowing it won't last long, has done wonders for me.
I suggest if anyone wants to try this, that you give it a really long trial - 4 months seemed so long, but supplements and herbs always take longer to work over prescriptions. The only side effect I have is more hot flashes (because of the riboflavin), but I am counteracting it with my hot flash herbs - getting those back under control. My doctor approves of this treatment wholeheartedly.
I've noticed a few more negative reports on the Internet; you need to take everything you read with an open mind. Yes, Petadolex is made in Europe and distributed here. Petadolex also has a patent on how to make this a safe supplement to us - early on it was discovered the Butterburr was hard on your liver. But...Petadolex changed the way they process it, so there is no danger to the liver. That's why Petadolex is the only formula you want to take.
My migraines used to always come on at 2-3 am (for over 15 years) - I would get up, get an ice pack, and take my abortive. Whenever they came on in the middle of the night, it took about 2 hours for the meds to actually work because I was not able to 'catch' it before it was full blown. My migraines now come on during the day - I don't know why they changed in this way. But at least if they come on during the day, I can take my meds (Zomig & Alleve) with a strong cup of coffee - which makes the meds work faster. Are you taking an abortive? (a med that can abort the migraine as it is happening) or a preventative that you take all the time? If not, it sounds like you would benefit a trip to a neurologist. There are many options available. I am having great success with Petadolex Butterbur supplement. Good luck, ShirleyView Thread
I had my first migraine when I was 16; they have gotten worse as I've gotten older (at 61). I have heard of hormonal migraines (ie menopause) but I don't know if migraines cease as you age. It seems if they started with menopause, that they would end once you are through. I don't know, since I've had them for 45 years now.View Thread
Hi itmatsb - No, I haven't tried Botox but I know some of the other members have. I'm just not sure it would be the best thing for me to do.
I had a spinal implant put in because an IV went seriously bad after I had abdominal surgery. I ended up with Complex Regional Pain Syndrome (or RSD ) in my right hand and forearm. Nothing worked at controlling that pain so I tried the implant - I was told that it would also help my migraines. I kept it for a year and had it removed. My new Pain Specialist suggested nerve block injections and assured me that it could help with my migraines also. I had a total of 4 injections in the nerve bundle in the neck and I didn't see any significant difference in my pain in my hand/forearm or in my migraines. There was no reason for me to continue getting them at this point.
The Butterburr is helping, as I said. I take herbs and supplements for other ailments and I've just found I do much better with them. It takes longer to get relief, but it works without any side effects.
Unfortunately, no one thing works for all. Being on this board has really showed me this. But I like the fact that it also gives you something different to try - that might work.
I'm so glad the nerve blocks work for you - where is the injection site? And where do you get your trigger point injections? I can't imagine getting the trigger point injections, as my sites are horrible painful already - from the Fibromyalgia , I also have.
It's interesting that many treatments and medications didn't work for you either. I even had a spinal cord implant - I kept it in for a whole year- it didn't work either, so I had it removed. I'm sorry to hear your migraines are so severe, after your stroke. I've had my migraines since I was 16 and they progressively got worse. I don't think there is anything on the market that completely obliterates them.
The Butterbur supplement is working some for me - last month I only had 14 migraines, which gave me enough migraine-free days to actually work on some projects. I am thrilled. No side effects either! ShirleyView Thread
Hi Rosie - I mix plain greek yogurt (2 Tb) with 2 Tb cooked Quinoa and I Tb Chia seeds (whole). I eat this every day; It is very tart, but I love it this way.
I have Fibromyalgia also, along with other things, but my migraines are the thing I deal with the most right now. I've tried way too many prescribed meds for everything and I am considered "side-effect sensitive" - so I really prefer herbal/natural/homeopathic also.
Riboflavin is just that - a Vit B complex. Quinoa gives you 50% Riboflavin with each serving. ShirleyView Thread
Hi Rosie - Over the last week I have had only 2 migraines - which means I had 5 days without a migraine - hooray - I can't remember the last time I went 5 whole days without pain. So, I think increasing the dose of Petadolex to the full dose of 3 per day is working. I will continue to take them and keep a journal to give to my doctor at my Sept. appt. So many times things will work for awhile and then stop - I sure hope this isn't the case this time. I also eat 2 TB. of Quinoa grain mixed with greek yogurt and chia seeds every day. The grain has the highest amount of Riboflavin in it along with the 8 amino acids our bodies need. Years ago, people took high doses of riboflavin and magnesium to help with their migraines. I figure it can't hurt, being I'm trying natural products. ShirleyView Thread
Rosie - Well, I went on to having a migraine on day 11 and on day 12 - I'm just waiting to see if I get another today. The longest run on daily migraines was 25 days last Dec. I am ready to have a lobotomy!! I have Fibromyalgia, Complex Regional Pain Syndrome, Osteoporosis - but my migraines cause me the most grief also. Shirley
itmatsb - I increased the Petadolex to full dose 2 days ago, so we'll see how I feel in a week. Have you tried Acupuncture? I picked up a flyer on migraines yesterday and it said people can have up to a 50% reduction in their migraines. I'm going to suggest it to my regular doctor. Anything is worth a try. ShirleyView Thread
OK I just read on another discussion that with cluster headaches, you have runny eyes and nose. I sometimes have this with my migraines (Doc calls them acute chronic migraines), so I wonder if when I do have these symptoms, I am having a migraine and a cluster headache at the same time. My doctor also said having migraine 'runs' - running on for days and days - is pretty common. Mine used to run on for only 3-4 days; the last one ran on for 10 days. It is very frustrating to say the least. I went to a pain specialist and tried Topamax, Neurontin, and Lyrica - didn't help. She also did a spinal implant on me - I kept it for a full year - it didn't work at all. I am trialing Petadolex (Butterbur extract) right now. I haven't tried Botox as I'm learry of anything that paralyzes the forehead muscles - a poison in fact. thanks for all your support. ShirleyView Thread