Thanks Jules - I decided that I am having rebound migraines from all the consecutive days I take Zomig and most often Zomig & Alleve together. Unfortunately my new doctor is not a good resource for me as a primary care physician. Anyway, I am on the third day of going "cold turkey" - I am taking no meds at all. I'm suffering all day with a headache and excruciating migraine pain every morning. I am determined to get out of this rebound headache cycle, so I can get back to taking Zomig only when a migraine hits. I did a trial of Petadolex (Butterburr) for 6 months and though it decreased my migraines significantly, I started having hot flashes at least 10 times a day. This was not acceptable to me, so I stopped taking the Butterburr. Magnesium does the same thing - I'm not talking about normal hot flashes - I 'm talking about drenching hot flashes lasting about ten minutes each time. I just ordered a product called Gelstat Migraine that is homeopathic (I have used Homeopathics before with other conditions and have had good results). Gelstat is feverfew and ginger root; I think it is worth a try. I am so tired of trying different prescriptions that only work for a short time or don't work at all. I' m not blaming medical doctors - I'm sure they are at a loss as to why nothing works well for me. I have already quit drinking alcohol , don't eat meats with nitrates, and I don't eat any processed foods. I eat Chia seeds daily and I'm starting to eat quinoa grain every day - both of these are supposed to help with headaches. I am hoping I can get my migraines under control this way, naturally, using Zomig only when absolutely necessary. FYI - my Neurologist did a complete work up on me and there is nothing conclusive as to what is causing my acute chronic migraines. I know this is frustrating for most of us who are migraine sufferers. So I am "taking the bull by the horns" and taking a proactive approach on my own. I'll keep you posted of this journey which I know isn't going to be easy. ShirleyView Thread
Yes Jules 2012, my doctor does know how many migraine days I have each month and that I take Zomig each and every time. Unfortunately she is a new doctor because my old doctor just retired; so I'm having to start all over explaining my migraines, what I've tried, etc. She is going to start me on a beta blocker (actually for my heart), that she is hoping will also help with my migraines. I know she is taking " baby steps" as I am a new patient, but I might have to go back to my Neurologist (who gave me the "acute, chronic migraine" diagnosis) to see if she can start me on something else. I do feel like I am getting rebound headaches - do you have a suggestion on how I can stop this horrible cycle I'm in?
I've tried just coping with the pain, but after a few hours of excruciating pain, I give in and take my meds to get relief. Thanks for responding.View Thread
I have 15-25 migraines per month; most times it seems like I have migraines non-stop. My abortive, Zomig, works every time, though it takes 2 hours to work. Rarely do I need a second dose. But I am so tired of taking migraine meds all the time. I am wondering if doing this can cause rebound headaches like OTC meds can. I have no other recourse at the moment even if this can happen, as nothing else helps. Comments?View Thread
You and I are very similar - I am on amitriptyline also and I use Zomig as my abortive. I am also going to try a beta blocker per my doctor. Unfortunately I have acute Chronic migraine - last month I had 24! I too wish someone would discover something that would actually help us long term.View Thread
Hi all - just an update with my results using Petadolex (history of 15 - 25 migraines each and every month).
I started taking Petadolex in April 2013. In March I had 21 migraines (normal); in May, I had 18 migraines (still within normal for me). Skip ahead to August - I only had 11 migraines!! Not only that, but my migraines have stopped running on for up to 8 days in a row. Now I have a maximum of 2 days running with each migraine.
Granted this supplement took a long time to work for me (4 months), but I was determined to give it a really good try. Yesterday I had a doctor appointment and the doctor wasn't surprised that I was having such a good outcome with the supplement. He has a few other patients with acute chronic migraines, like me, that are having just as good results.
So, I am thrilled to have so many days without a migraine - I'm able to get more done, exercise, and have a 'normal' life. On the days I do have a migraine, it is the same as always - but knowing it won't last long, has done wonders for me.
I suggest if anyone wants to try this, that you give it a really long trial - 4 months seemed so long, but supplements and herbs always take longer to work over prescriptions. The only side effect I have is more hot flashes (because of the riboflavin), but I am counteracting it with my hot flash herbs - getting those back under control. My doctor approves of this treatment wholeheartedly.
I've noticed a few more negative reports on the Internet; you need to take everything you read with an open mind. Yes, Petadolex is made in Europe and distributed here. Petadolex also has a patent on how to make this a safe supplement to us - early on it was discovered the Butterburr was hard on your liver. But...Petadolex changed the way they process it, so there is no danger to the liver. That's why Petadolex is the only formula you want to take.
My migraines used to always come on at 2-3 am (for over 15 years) - I would get up, get an ice pack, and take my abortive. Whenever they came on in the middle of the night, it took about 2 hours for the meds to actually work because I was not able to 'catch' it before it was full blown. My migraines now come on during the day - I don't know why they changed in this way. But at least if they come on during the day, I can take my meds (Zomig & Alleve) with a strong cup of coffee - which makes the meds work faster. Are you taking an abortive? (a med that can abort the migraine as it is happening) or a preventative that you take all the time? If not, it sounds like you would benefit a trip to a neurologist. There are many options available. I am having great success with Petadolex Butterbur supplement. Good luck, ShirleyView Thread
I had my first migraine when I was 16; they have gotten worse as I've gotten older (at 61). I have heard of hormonal migraines (ie menopause) but I don't know if migraines cease as you age. It seems if they started with menopause, that they would end once you are through. I don't know, since I've had them for 45 years now.View Thread
Hi itmatsb - No, I haven't tried Botox but I know some of the other members have. I'm just not sure it would be the best thing for me to do.
I had a spinal implant put in because an IV went seriously bad after I had abdominal surgery. I ended up with Complex Regional Pain Syndrome (or RSD ) in my right hand and forearm. Nothing worked at controlling that pain so I tried the implant - I was told that it would also help my migraines. I kept it for a year and had it removed. My new Pain Specialist suggested nerve block injections and assured me that it could help with my migraines also. I had a total of 4 injections in the nerve bundle in the neck and I didn't see any significant difference in my pain in my hand/forearm or in my migraines. There was no reason for me to continue getting them at this point.
The Butterburr is helping, as I said. I take herbs and supplements for other ailments and I've just found I do much better with them. It takes longer to get relief, but it works without any side effects.
Unfortunately, no one thing works for all. Being on this board has really showed me this. But I like the fact that it also gives you something different to try - that might work.
I'm so glad the nerve blocks work for you - where is the injection site? And where do you get your trigger point injections? I can't imagine getting the trigger point injections, as my sites are horrible painful already - from the Fibromyalgia , I also have.
It's interesting that many treatments and medications didn't work for you either. I even had a spinal cord implant - I kept it in for a whole year- it didn't work either, so I had it removed. I'm sorry to hear your migraines are so severe, after your stroke. I've had my migraines since I was 16 and they progressively got worse. I don't think there is anything on the market that completely obliterates them.
The Butterbur supplement is working some for me - last month I only had 14 migraines, which gave me enough migraine-free days to actually work on some projects. I am thrilled. No side effects either! ShirleyView Thread
Hi Rosie - I mix plain greek yogurt (2 Tb) with 2 Tb cooked Quinoa and I Tb Chia seeds (whole). I eat this every day; It is very tart, but I love it this way.
I have Fibromyalgia also, along with other things, but my migraines are the thing I deal with the most right now. I've tried way too many prescribed meds for everything and I am considered "side-effect sensitive" - so I really prefer herbal/natural/homeopathic also.
Riboflavin is just that - a Vit B complex. Quinoa gives you 50% Riboflavin with each serving. ShirleyView Thread