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Perhaps things will start to really change when the full scope of the new healthcare plan goes into effect, who knows? It cannot be any worse than what I have already experienced with insurance companies.
Keep inquiring with your state programs as well, you never know when things might change there too. In the meantime, stay proactive and if your doc is not helping try to find a good migraine specialist who will. It really does make a difference.View Thread

In the meantime, keep checking in if anything changes, and I hope you continue to do well on your current regime!View Thread

Boy do I know how you feel! Not only do I not get the right information but it is often glossed over when I tell my doc about it, which is what I am supposed to do, right?
March 2013 has been pretty much of a wasteland for me in spite of my efforts to make it different. Regulating sleep has been so difficult, and also dealing with everyday pain so difficult, that I have had to cancel everything I was hoping to accomplish and it is now the 20th of the month and I am where I was on the 1st.
I try to give meds a chance but my body is worn out from all the meds I have tried and made me ill. I just don't have the patience anymore to wait and see - the migraine will go away - for a new med. Eventually I can get to that place, but it takes a lot of gumption and willpower.
Try to see if you can get on Federal Disability to help with costs. You will automatically go on Medicare, and this is a big help, believe me.
Hope you start feeling better soon. Tomorrow is another day which is what I am reminding myself of right now.View Thread

This happens often with me. My system is pretty sensitive now and I cannot withstand all drugs. I think this is what is happening with the Botox, but I won't be sure until I get the second series in June. I will probably ask that the neuro up the dosage to see if that works better, as the first neuro that gave me shots a few years ago felt that the initial 100 units was too low to do any good. It may also be that those two series of Botox shots made my system reject it this time. Sometimes that happens even with a 2-3 year holiday. I have not be able to use prednisone as an acute migraine med since 1993 when I first took it and it worked well. After that, nothing but a migraine that was worse than I already had from the drug, and that has been a 20 year holiday. How time flies when you are in pain!
So far I have noticed no improvement from the Botox, but I am only in my second week after the shots. I also have no signs of numbness or any of the other side effects listed by the mfr. I may be an anomaly or just someone who is on the outliers of all the testing and statistical information.
I am seeing a very very good Migraine specialist at my own cost so I am hopeful he will have some ideas about what might be a good way to proceed. Am just waiting for him to review all my info and get back to me, so I will report on that when I have more information. Thanks for your support. I really appreciate it!View Thread


Thanks for the extra questions to ask, and I will do so. I'll let you know how it goes.View Thread


Thanks for the suggestion. I don't juice because I find that I drink about 4 times the amount of the whole food when I do, so I eat an apple or an orange rather than drink 8 oz of the juice which my contain the juice from 4 oranges. And I love juice, but some of my meds keep the weight on so I am trying to be more careful since I have limited energy with all the pain.
When I stopped all caffeine, dairy was the first thing that showed up as a migraine trigger so it is interesting to me that others may have that. One of my staple foods was yogurt, and I miss it like crazy, but I don't eat what gives me pain. That is a better incentive than the risk. And I was a vegetarian up until I started having gastrointestinal problems about a year ago. I ate white rice, bananas, apples, white bread, chicken broth and chicken (no skin) for an entire year. Now I am working in some more veggies and beans and switching back to brown rice, but I still have to be careful. I think it all comes from taking so many medications over the years than my system is very sensitive.
I now am very careful when I talk to my docs, and don't just take something because they want me to. I do my own research, ask a lot of questions, and then do it if it seems like it will work.
Thant was rather a long reply to your suggestion. Thanks for chiming in and I hope you are getting a hold of your triggers.View Thread

I will certainly send a note to him about the dosage and get some info on what is normal to start with, and raising it, etc. I have had no luck with nerve blocks or RFA's either, and the trigger pt. injections worked well once or twice but only for an hour or so, which made no sense considering the cost.
I'll keep you posted as I go.View Thread

I am sorry you have to resort to ER's for rescue meds. I hope you can find one that will work. Go to migraine.com, or this site may have it as well, for a list of all available migraine meds. A new one has just been approved that is talked about on migraine.com. Be sure to check all side effects. I am much more conscious about that now, since I am taking one med that seems to be working but my hair is falling out, and it is had kept me from taking off the weight I put on after stopping Topomax. Side effects are a real problem for me these days because my system is getting more and more sensitive as I get older. In my head I am one age, and my body is another age, so I am trying to reconcile the two.
I'll post again when I have something to report.
Thanks so much for your support - it is why I like these sites.View Thread
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