Hi Shelia - I agree with CarpetCrawler5 and with Dr Collins. Ask your parents or a good friend to help you, especially if you are having memory loss, to write down everything that you have taken so far, when, for how long, and what your reaction to it was, and why you stopped taking it (if you did) and what you are taking now. Keep a daily diary! This is so important, because the docs need something to work with, even if they barely read it, or get confused with all that information. When you have all that done, and that is why I am suggesting you get some help with this because what I am saying sounds overwhelming, especially when you are feeling so bad. Then I would check your insurance, or your parent's insurance and see if it will cover a visit to the Diamond Clinic in Michigan. I don't know where you live, but I think they do a very comprehensive screening of everything that may be causing your symtoms. It could be so many things, and everyone is different so there is no one thing anyone can point to.
Hi SpaceMan27- I would go back to the pain management place you went to and get another set of RFA's and nerve blocks. I had them done a few times, and they never worked for me, but a two month lack of pain from the RFA sounds like heaven to me, and for a more permanent result you may want to try having a few more treatments. You may also want to ask the pain clinic about botox injections in the back of your neck (in trigger points) in conjunction with the blocks, and find a very good massage person that will help keep your neck and traps loose after these procedures are done.
You can also try Yoga - I would suggest Iyenegar style because that is the only one that deals with healing the body, and look online for the Iyenegar Institute, call them and try to find a senior practioner in your area. A bad yoga instructor can do more damage in a few sessions than doing nothing at all, so find a good teacher, and depending on where you live this may be difficult. You will know after one session whether the person is hurting or helping.
I have been on MS Contin, percoset, oxycontin, and have found them to be poor pain controllers. I have had good luck with Toradol injections, which is an NSAID, takes about 4 hours to work and you must catch the mgraine at the beginning otherwise it will not help. I like it because it is non-narcotic, and those are really hard to get off of when they are not working.
Just stretching and keeping the muscles limber when the blocks are working may help. Good luck and keep in touch.View Thread
Pain is different for everyone. I don't know whether Mr Armstrong suffers from migraines but after 41 years of these debilitating "headaches" that have not gone away at age 50 as I was told by a well known neurologist specializing in migraine headaches. Instead they increased in frequency, I began having auras which plague me still. One does keep going as best as one can, adjusts, and deals through it all, even as this constant pain takes its toll.
No one, no one, who does not deal with ongoing chronic pain - not brought on by activities they choose to participate in - knows what migraineurs suffer through sometimes 4-5 times a week. It is statements like Mr Armstrong's that gives the public the idea that people with migraines have pain that will just go away if they keep going and doing what they do, participating in everyday activities, and pay no attention to the blinding pain, nausea, sensitivity to light and sound they are feeling. This is a quote taken out of context, and is comparing apples and oranges. Mr Armstrong chose to train to be a world class bicyclist and worked through the pain of his body as he drove it to extremes to keep it in that condition, and mentally keep his mind fit.
Migraines are neither a mind game or a matter of training in the gym to push thru the pain to reach a goal. They come back over and over, without control by the person having them. There is much more information about the causes and triggers for them than there was when I first started having them. As a staff member, I would suggest you be more sensitive to the real pain migrainerus suffer with and live with, and leave this kind of comment aside.View Thread
I have had had a a headache, basically every day in some form or another for the last 41 years. It has now interrupted my life so much that I am on disability, and as I have gotten older the toll it has take on my body and my will to just push through the pain and keep going has lessened. My advice is to get help early, and go to headache specialists. I have heard good things about the Diamond Clinic but my insurance would not cover any of it when I was investigating tx there and I could not afford it. I have been on all of the drugs everyone has mentioned, and am now back on a lowered dose of Topomax as it seems to lessen the frequency of attacks which was 4-5 times a week. Finding a med that will actually take away the pain is difficult. Most drugs work once or twice, and then not at all, but I find the earlier in the cycle I catch the onset, the better I am. I am now using injections of Toradol, which take about 4 hours to work, but if I take it at the onset, will get rid of the migraine early. Good luck to everyone with this malady. I too have degenration in my C-spine but not enough for surgery. My pain doc is great and we keep trying things. These posts are helpful because they keep reminding me that everyone is different, and for all of us, there is something out there that will lessen the pain and make life more bearable and allow us to lead a more normal life.View Thread
I have just started taking Topomax again after dropping it for about 3 years. I am wondering now if all the side effects that I dropped it for in the first place and made it so not worth taking was when the drug went generic? I'll ask my doc to see and report back.View Thread
Try to get all your docs to talk to each other. This will not be easy, but your migraines may come from other medical issues and be exacerbated by drug interactions. A good headache neuro will be able to help here, although you will need a good push from someone other than yourself to get them to even send an e-mail to another doc. Based on what you've said, move the headaches to the top of your list. If you have other problems you do not want this one added. I have a high pain tolerance too, and will suffer a lot of pain before taking medication, but more recently, there are some meds that can prevent the migraines from starting. Good luck.View Thread
I had not been working for over 10 years when I applied and got it very very quickly. I would rather work than deal with all the pain and medicine, but at least this will help stop the flow of savings depletion. Glad you got the disability. It is a real help.View Thread
How old are you now, and what have you done so far to stop the severity of your migraines? What regular treatment are you using, or are you using nothing at the moment, and do you have a headache neurologist you are working with?View Thread
It is probably a migraine, but could be a symptom of something else depending on the age of your friend, if there were any specific triggers to the two attacks that were similar, that had never happened before, and lots of other variants. Google the National Intstitute of Headaches for the closest neurologist practitioner in your area with a specialty in headaches, call them, and find out what you need to make an appointment. You will usually need a referral from another doctor, so be prepared. The visit will take approximately 6 weeks to 3 months to get, depending on the doctor, and you will have to fork out $500-750 of your own money. The doctor will send you and 8-10 page form to fill out about the pain you are experiencing and ask you, if you have not already to start keeping a food diary of everything you eat, and when you get your headaches. This is normal procedures, and you should start doing this in any case. Also keep track of all your headaches, when they start (time of day), duration, what happens - as you described above - and what happens after the pain is gone, eg excessive tiredness, feeling of elation, more energy followed by a letdown, depression, whatever. Keep detailed records. If you have insurance your neurologist will probably want an MRI and/or a CT Scan which most insurance co's will pay for if pre-approved, so get that done through the doctor's office. By the time you get all that in place, the 6-10 weeks will be up and you will be ready to see the neurologist, and you will have a better picture of these headaches. They rarely come in twos and stop altogether if they or migraines, or if they are symptoms of something else. If they become really severe, so you cannot go to work, let your primary or whomever is giving you the referral know, and he can advocate for an earlier appointment on your behalf. Take a friend with you to the appointment so you get all you questions asked and they can write down all the answers, because the patient always hears things differently than another person.
Before the appointment do some research about migraines, and remember everyone is different. What works for one person does not necessarily work for another, so don't expect a miracle cure. Migraines cannot be cured, but they can be managed. You need to find the right doctor, and the right managment and proactivity on your part is the name of the game. I have be at this for 43 years, and I know what I am talking about. Write me if you have any questions. I know as much as most doctors, and in some cases more. Good luck!View Thread
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