My son has suffered with haemaplegic migraines (migraine with paralysis) for the past 5 years and has tried many drugs. He is now on epilepsy drug topirimate which for him is fantastic. He has gone from 8 episodes a day of paralysis to 1 to 2 a year. His migraines are reduced from one a week to one a month. We have recently discoverd that garlic and onions can set him off when im cooking so now a garlic and onion free environment lol! It is very hard watching someone you love go through this and for them it is hard being looked at in the street as though they are drunk or on drugs. It has been a long journey for Jordan with some people especially his work place not being very understanding (its just a headache) but he is now seeing a light at the end of the tunnel and has moved out from home to share a house with his very understanding friends and is finally able to get on with his life. He has tried coming off topirimate a couple of times but paralysis and migraine return with a vengeance so for now he is staying with this fabulous medication that seems to work for him but not all sufferers. Good luck know what you're going through AlisonView Thread
My son has suffered with these for the past 4 years. Sometimes he gets left side paralysis and sometimes right with loss of speech and sometimes whole body paralysis. He has been on epilepsy drug topirimate for the past 3 years after trying various other drugs that made him put weight on and his blood pressure up. Topirimate has been fantastic and has reduced his episodes of paralysis to nearly nothing and now has maybe one migraine a month compared to one a week. He is 19 years old now and less stressed and managing to lead virtually a normal life going out with his friends again and has even managed to move out from home and try it on his own. Hope this helps and gives some of you hope.View Thread
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