My son has suffered with haemaplegic migraines (migraine with paralysis) for the past 5 years and has tried many drugs. He is now on epilepsy drug topirimate which for him is fantastic. He has gone from 8 episodes a day of paralysis to 1 to 2 a year. His migraines are reduced from one a week to one a month. We have recently discoverd that garlic and onions can set him off when im cooking so now a garlic and onion free environment lol! It is very hard watching someone you love go through this and for them it is hard being looked at in the street as though they are drunk or on drugs. It has been a long journey for Jordan with some people especially his work place not being very understanding (its just a headache) but he is now seeing a light at the end of the tunnel and has moved out from home to share a house with his very understanding friends and is finally able to get on with his life. He has tried coming off topirimate a couple of times but paralysis and migraine return with a vengeance so for now he is staying with this fabulous medication that seems to work for him but not all sufferers. Good luck know what you're going through AlisonView Thread
The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatments or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service, or treatment.
Do not consider WebMD User-generated content as medical advice. Never delay or disregard seeking professional medical advice from your doctor or other qualified healthcare provider because of something you have read on WebMD. You should always speak with your doctor before you start, stop, or change any prescribed part of your care plan or treatment. WebMD understands that reading individual, real-life experiences can be a helpful resource, but it is never a substitute for professional medical advice, diagnosis, or treatment from a qualified health care provider. If you think you may have a medical emergency, call your doctor or dial 911 immediately.