If you have another stroke it is best that it is in front of your students or someone who can then call 911 to get you treatment as soon as possible. What is so terrible about a student seeing someone get sick.
You don't say a thing about what precautions are being taken to prevent you from having another stroke.
Yes, the symptoms you describe are exactly what a stroke survivor experiences--facial droop, difficulty walking, losing balance, falling, etc.
Topomax is a normal daily preventative migraine medication. Have you tried any others? Why can't you take normal migraine meds? If not, then why haven't you tried Botox injections?
If none of the daily preventative migraine meds have not worked, then you have a very good chance of having Botox injections work. Have you tried them?
If you are having your migraines that often, do you know that taking any pain relievers more than 2 times a week can risk you getting rebound migraines?
Petadolex (an herbal med) has been tested and found to reduce migraines by 72%. Namenda (off-label) at 25% of the dose given for what its usual use is for, has helped me a lot. My Headache Specialist said that it was good with "central migraines", whatever that is.
Also have you tried Butrans patches? They have kept me out of the ER!
To Karen, I only take Namenda 5 mg once a day which has helped so much. My Headache Specialist, which are very rare to find, told me that 10 mg would be the highest that he would prescribe. But I am also getting Botox, nerve block and trigger pt injections, Butrans patches, an anti-depressant, Petadolex and now Baclofen (for my neck tightness). But my migraines are especially hard to treat because they were caused by a major stroke.
The Botox could not make you sick. It had to be something else. And the first time that I got the Botox, I had no relief. That's not unusual, because then they give you a higher dose plus the repeated injections increasingly help you. Yes, I felt the same thing, that that very brief pain from the Botox was nothing compared with my 10 level migraines. Let me know what dose level of Botox that you got. Or perhaps you need a better Botox doctor.
Yikes, you had nerve blocks under your eyebrows!! That sounds really painful. Mine are above my eyebrows, the sides and back of my head, my neck, shoulders and back. That's because I have very tight neck and shoulders which contribute to my migraines big time. They only hurt on my face.
Let me know what all you have tried. There has to be an answer to relieving your migraines. SaraView Thread
I was diagnosed with occipital migraines that were severe 24/7. Now before you read what has helped me, you have to understand that my migraines are extremely difficult to treat because they were caused by a stroke, so the treatments for you could be far less often and you may only need one of them.
I am being treated in a pain management clinic at one of the top university medical systems in the country. I get nerve block and trigger point injections every 4 weeks in my forehead, sides and back of head, neck, shoulders and back area. I get no steroids in these injections. I get more of them than any of their other patients and every 4 weeks, whereas some of the other patients only get them every 3 months. They have helped me enormously.
I didn't respond to any of the daily preventative migraine meds, so I responded very well to Botox injections which are most likely to help people who have not responded to these meds.
I wear Butrans patches which have kept me out of going to the ER about every 3 weeks and I can walk more than before.
I just started an off-label medication a couple months ago called Namenda which has helped me significantly.
I only use the abortive pain meds 2 or 3 times a week at the most because otherwise you risk rebound migraines. Many weeks I don't have to use any pain meds.
That's a far cry from the severe 24/7 migraines that I started with almost 5 years ago.
Any questions, post me back. I try to share what has helped me because migraine pain is terrible. I would greatly like to hear from anyone who is interested or who wants to try any of these.View Thread
To Kdquinton, Thanks so much for your response. I only just got an email alerting me to it. What has helped me even more since my last posting, is an off-label medication called Namenda. You take it at a very low dose 25% or 50% of the dose that it is usually given for its intended use. The Headache Specialist, (very few of them out there), told me that it had helped others with what he called were "central migraines"... whatever that is. Insurance won't cover the herbal one, Petadolex, but it would cover Namenda.
Also Butrans Patches, which give very low doses of opiates 24/7 have also helped me a lot.
And since you are hurting most of the time, have you tried Botox injections? Or are you needle resistant? You can tell me Hope that you will find some relief very soon. It's so very difficult to be hurting most of the time. SaraView Thread
Did you think that the Botox injections would work in several days? Shame on your doctor. My doctor told me that it would take 1 to 2 weeks to work. I always take 15 days for it to work on me. And the doctors usually start off low on the first dose. My first dose at 100 units did nothing. But the second time, the doctor increased it which did help me. He has kept raising it more over the past 3 years and it has given me significant relief. Also with repeated doses, the relief gets better. So don't give up yet if you are truly trying to find relief from your migraines. Also occasionally the Botox just doesn't work. That has happened to me a couple times over the past 3 years.
And just to let you know, a Headache Specialist prescribed on off-label medication called Namenda which he said he had seen significant relief in those with what he called "central migraines". That medication has helped me. Have you tried that medication?View Thread
Hey, that's great! I hope that you're able to get them. The doctor told me to expect results in 5 days to 2 weeks. My improvement always happens exactly 15 days later. The doctor admitted that he had another patient who told him the same thing, but he likes to say within 2 weeks--can't blame him for that. Good luck.View Thread
Make sure you aren't pressing your neck where your carotid artery is. That's a way that can cause a carotid artery dissection stroke! There are proper ways to loosen up the neck, but never on the front on the neck by the jaw. You would be best to get the exercises from physical therapy, or better yet, get nerve block and trigger point injections. The neck pain causes migraines. And taking any pain reliever more than 2 times a week, you risk continual rebound migraines.View Thread
I didn't do well on any of the daily preventative migraine meds, but that's not to say that you shouldn't try the various ones. What has worked for me are Effexor (now the newer version of Pristiq), Petadolex (an herbal one), Namenda (an off-label medication), and Butrans patches. The Butrans patch is a low dose of opiates which have allowed me to walk more without getting a terrible migraine and has also kept me out of the ER. I used to have to go to the ER frequently.
But I also get nerve block, trigger point injections and Botox injections. But then I've got an unusually difficult migraine to treat because it was caused by a major stroke. You shouldn't need nearly as much, but just to let you know there other remedies.View Thread
Sorry, just saw your response. I started at 100 units with absolutely no help. Now at 245 units. Repeated doses do show improvement. I need mine every 10 weeks which is the shortest time the doctor allows. But then again, I have a very difficult migraine to treat because it was caused by a stroke. I would ask the doctor how much experience they have giving the injections and what side effects have they had in their patients. I chose a doctor who had about 10 years experience and reported no bad side effects. I had previously declined getting them from another neurologist who told me that he had just one patient whose head was heavy afterwards for awhile. I've been getting them for almost 3 years now every 10 weeks with no side effects, but relief from my migraines.View Thread
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