I don't have any lasting relief from the 15 nerve block and trigger point injections that I get. Others get them months apart. I need them every 4 weeks, but then I have a severe 24/7 migraine condition that was caused by a major stroke. But they do really help me for that first 3 weeks.
Also if you go back to the Botox injections, ask what the dose is? My first time, the Botox did nothing for me. Then when the doctor raised the dose, I got great relief. I'm now at 245 units, but he said that I can go higher. Also others only need the Botox every 3 months or more. I need it every 10 weeks and it doesn't last that long. But anything is helpful. I am still quite disabled even with all the help. Can't do much at all.
Let me know how the Botox works and find out how many units you are given. Good luck.View Thread
To: Sunk, Hayden and rosecap and cracked68 and b_goddess_1978,
How come all of you have asked for help. I gave answers to all of you and no one has responded back. Acknowledging my postings would help me to be willing to continue posting on this website at all. On another medical website, there are always responses. I hope all of you have found help with your migraines, but I wouldn't know.View Thread
To Kbinns89, I'm really interested to know if your migraines are far better. I also am getting Botox, nerve block injections every 4 weeks, wear a Butrans patch (24/7 opiates--low dose), plus take 2 daily meds for my migraines and still have a limited life. But my migraines are especially hard to treat due to it being caused by a major stroke. So how are you doing? Let me know.View Thread
You don't mention seeing a neurologist other than to get an MRI which only rules out severe conditions like a brain tumor. You definitely need medical help. Have you continued to see a neurologist? What does the doctor give you to treat it? If you haven't kept seeing a neurologist, get an appointment ASAP. No can properly diagnose you on a website, but you definitely have problems which need to be addressed. Good luck to you.View Thread
So very sorry to hear about your pain. You definately need to see a neurologist for your migraines. And taking any pain med more than 2 times a week, including the NSAIDS, can cause rebound or continuing migraines. You need to be very clear with your parents about how intense your pain is. Tell them that you absolutely cannot take the pain. Have your step sister explain what happened to you sleeping. I've had to go the ER many times when I absolutely couldn't stand the pain. And just because everything shows up normal on your MRI or CT Scan doesn't mean that you don't have a real problem. The purpose of an MRI is to rule out things like brain tumors or multiple sclerosis. Since your parents haven't experienced as much pain themselves, they apparently cannot empathize with you.
You can go yourself to the emergency room which will cost them money. Tell them that you will need to keep going as you cannot stand the pain. Have a friend, another relative or take a taxi to the hospital. Maybe that will get your parents' attention. It's hard to believe that they aren't sending you to a doctor. If your medications haven't worked, there are Botox injections that would probably help you. Or possibly nerve block injections. That's why you need to see a neurologist and preferably a headache specialist. There are many people who have terrible migraines and need medical help. I certainly wish you the best. Good luck. SaraView Thread
Why would you stop taking a drug that helps your migraines and your depression? I don't begin to understand your reason. You stated that while you minimized the medication, then you got major depression. And some psychotic stuff came back when you stopped taking the amitryptaline.
And I don't believe that any knowledgrable doctor would determine that the migraines are psychological in nature because anti-depressants are taken as preventative migraine medication because anti-depressants are natural pain killers. REALLY. Find some better doctors if that's really what they told you.
What did the doctors say about the blood in the stool? You need further testing to determine what the actual cause is.
I read about your extensive 44-year history, so I would be interested in any opinions that you may have.
You mentioned the spinal tap which I believe is what my neurologist just ordered for me because he wants to get a "lumber puncture" to test for leaks that may be lowering the pressure in my head--I believe. I'm all for it after how disabled and in pain that I've been. I've been suffering from initially 24/7 severe migraines caused by a major stroke over 4 years ago. Now mild to severe depending on treatments. Very difficult to treat and all the doctors say that I may have them for the rest of my life because of the cause.
My main neurologist has been treating me along with another headache specialist, and two other neurologists all at the same university. One of the other neurologists is an neuro-opthamologist who gives me Botox injections which have helped me a lot. The main neurologist also has a Phd at the University's specialty pain clinic. There is no one else in the whole University system that can do all the injections spots with nerve block and trigger points that he knows how to do. Those have also helped me. They have tried to find another doctor to hire, but have difficulty finding anyone with his skills. I'm wondering if you've tried Botox or the other injections?
So I trust his judgement for me to have the spinal tap. And I've had numerous MRI/MRA and CT scans due to the stroke and a brain aneurysm. I'm a total menagerie of medical problems since my stroke. I've finally come to accept it, although I do experience grief about important things that I cannot do. But I'm no longer going through severe depression about the pain and what I can no longer do. You sound like you have come to grips with your pain as well, but it is hard, no doubt about that.
I would look forward to hearing more from you.View Thread
To mymygraine, You sound like a very thoughtful person with a lot of good advice. I am concerned about your long history of migraines. You don't make any mention of Botox, nerve block or trigger point injections. Have you tried them or are you resistant to needles? Also have you tried a Butrans patch? I would be interested. Good luck.View Thread