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Migraines & Headaches Community

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HeadachesSuck22

Joined: 09/26/2011

My Story:

My name is Sandra and I am 21yrs old. I have been struggling with headaches since the age of 11. I have been through so much pain in my life, that I have found a strength in me I didn't know existed. I have been to over 20 doctors within these 10 years, and have battled different diagnoses. My Mom suffers from migraine headaches, so I was first told it was genetic. As soon as my headaches started getting worse, they told me I suffered from a mixture of cluster and tension headaches with a tad of migraine. I have tried so many medications, I have to keep a list close by. I have also tried other alternatives such as, physical therapy, pain management, acupuncture, chiropractics, psychologists, botox, massage therapy, and others I can't remember.

I have had countless MRI's, CT's, X-rays, sleep studies, full blood work, and two LP. The first LP when I was about 13. The technician hit a nerve of mine where I lost the feeling in my legs for about a week. The hospital took no responsibility, so Thank God the feeling came back into my legs. One of the worst pains I have ever felt! The second was about 2 months ago where I was diagnosed with...making too much spinal fluid. Evidentially, the fluid is pushing up against the back of my head, causing massive headaches. Who would have thunk it? I am currently on about 8 different medications. Most of which are counter agents for the side effect of the alpha of all medications I'm taking...Diamox. Let me tell you, this is a nasty little drug and I hate it. It has sooo many side effects, and I have most of them. According to my neurologist, my headaches will get worse to get better. I'm still in the "worse" stages. But before I could start taking this drug orally, I had to undergo an IV infusion for one week where Diamox was pumped into my veins. I had a bad reaction on one of those days, and was told I turned into The Hulk. I have no recollection of that day, and ever since I started this medication, my memory has been incompetent. One of the lovely side effects.

My parents have been through all this mess with me. There is absolutely no way I could have done all of this alone. They have been my angels. They are my heroes.

About a month ago, I got really really sick. Like ER sick. I couldn't stop throwing up, my head felt like it was going to explode, I had absolutely no strength to walk or get up. It was horrible. I was at the end of my rope. I just couldn't take the pain anymore. The doctors can't say why I got as bad as I did, but I have my suspicions. I haven't been able to work for about a month, but I know that my health comes first. A lesson that was tough for me to learn. I had decided a while ago to settle with the pain and to just live with it. Everything I had been through had made me bitter and cynical. I then realized it has consumed most of my life and I realized that I haven't lived yet. So...we are now looking into UCLA. Hopefully there will be a doctor there that can help me. Meanwhile, I am on Diamox and hating every minute of it. I am always hoping for the best, but expecting the worst.

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Rebound Headache

Hello...my doctor recently diagnosed me with rebound headaches. I have been on...

Sandra

Posted by HeadachesSuck22

2 Replies | Reply | Watch This DiscussionReport This| Share this:Rebound Headache Hello...my doctor recently diagnosed me with rebound headaches. I have been on...

Reply: chronic migraines

Have you seen a nuerologist?? Have you had a lumbar puncture?? Maybe your spine is...

Sandra

Posted by HeadachesSuck22

3 Replies | Reply | Watch This DiscussionReport This| Share this:chronic migraines Have you seen a nuerologist?? Have you had a lumbar puncture?? Maybe your spine is...

Reply: Effexor for migraines-side effects

Sorry i've been MIA. No. I don't have a facebook. Everyone is on me about getting...

Sandra

Posted by HeadachesSuck22

83 Replies | Reply | Watch This DiscussionReport This| Share this:Effexor for migraines-side effects Sorry i've been MIA. No. I don't have a facebook. Everyone is on me about getting...

Reply: Effexor for migraines-side effects

Stephanie...how I wish I had your number so we can txt or something. I am soo...

Sandra

Posted by HeadachesSuck22

83 Replies | Reply | Watch This DiscussionReport This| Share this:Effexor for migraines-side effects Stephanie...how I wish I had your number so we can txt or something. I am soo...

Reply: Effexor for migraines-side effects

OMG...I am freaking the f*** out. So, remember how I told you I got super sick?...

Sandra

Posted by HeadachesSuck22

83 Replies | Reply | Watch This DiscussionReport This| Share this:Effexor for migraines-side effects OMG...I am freaking the f*** out. So, remember how I told you I got super sick?...

Reply: Effexor for migraines-side effects

Thanks...but I have to say, I am not a fan of Pauly Shore. But I will definitely...

Sandra

Posted by HeadachesSuck22

83 Replies | Reply | Watch This DiscussionReport This| Share this:Effexor for migraines-side effects Thanks...but I have to say, I am not a fan of Pauly Shore. But I will definitely...

Reply: Effexor for migraines-side effects

Well...still, you were happy at one point, right? That's what i'm jelous of. I...

Sandra

Posted by HeadachesSuck22

83 Replies | Reply | Watch This DiscussionReport This| Share this:Effexor for migraines-side effects Well...still, you were happy at one point, right? That's what i'm jelous of. I...

Reply: Effexor for migraines-side effects

Well it is nice to meet you. I'm sure you know me by now. But if you have any...

Sandra

Posted by HeadachesSuck22

83 Replies | Reply | Watch This DiscussionReport This| Share this:Effexor for migraines-side effects Well it is nice to meet you. I'm sure you know me by now. But if you have any...

Reply: HELP PLEASE, in need of serious migraine help, PLE...

Well...i'm glad to hear it couldn't have caused any damage. What else has your...

Sandra

Posted by HeadachesSuck22

7 Replies | Reply | Watch This DiscussionReport This| Share this:HELP PLEASE, in need of serious migraine help, PLEASE HELP Well...i'm glad to hear it couldn't have caused any damage. What else has your...

Reply: Effexor for migraines-side effects

OMG...I am sooo pissed off. This a**hole doctor just sent me a bill of $200. We...

Sandra

Posted by HeadachesSuck22

83 Replies | Reply | Watch This DiscussionReport This| Share this:Effexor for migraines-side effects OMG...I am sooo pissed off. This a**hole doctor just sent me a bill of $200. We...

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