Relax and other triptans work best if you take them when the migraines are starting. Maybe yours is too far gone for it to do much good at this point.
Botox has a really good track record. Make sure your practitioner (neurologist) has a lot of experience with it, that is a big part of the success. You can usually find that out with your insurance company. In the meantime it might be good to keep yourself hydrated with plain old water and keep NSAIDs and Tylenol to a minimum. Eat good food and try to stay away from junky stuff so your body can get stabilized a bit. High 85% cocoa dark chocolate is a nice treat. A small cup of good coffee helps some people, but is awful for others.
Meditation might help calm the jangled brain, 5mg of melatonin at night might help also. Ice on the back of your neck with a warm pack on your forehead at the same time.
I'm just throwing things out here, trying to guess at things to help get your brain calmed down while you're waiting to decide on the Botox.
I don't have any experience with it but am also curious, have read good things about it. If you don't get responses here perhaps you could write this up at migraine.com. There is a larger population there and it's more likely to get answers I think.
The only thing that comes to mind are the ice pick types of migraines. Why don't you look them up and see if the symptoms are similar to what you're experiencing.
It might not be much of anything, weird sharp head pains are known to come and go for unexplained reasons. Make sure you're well hydrated and in a nice cool room, the usual good sleep hygiene recommendations.
If you still have concerns, schedule time with your doc. Perhaps it's better to be a little more cautious given your recent history.
Oh that sounds so miserable, I'm sorry you're going through all that. A lot of what you're describing, vision problems, confusion, etc, are typical parts of migraines. I recommend going to migraine.com and read about what others experience. It's a good site for us, lots of valuable shared experiences and advice.
Do you keep a headache diary? If not, it's a good idea to start one. There are plenty of apps for your phone or tablet that make it easy to keep track. After awhile you may see trends, triggers that will help you manage things.
Are you seeing a headache specialist? They know so much more about treatment modalities than a family physician, and the things you're describing aren't run of the mill. My guess is you'll use a mix of preventatives, abortives, supplements, and lifestyle changes.
For abortive meds, ask for one that's injected or inhaled, in addition to the pills. The injectables hurt like hell for a few seconds but you won't vomit it right back up, and they work fast. Also request a med for the vomiting. I wonder if your normal every day headache could be a low level migraine. Have you ever taken your migraine meds for that headache?
For now try to avoid processed food and alcohol. They're famous for triggering migraines. Eat good stuff. For your aching shoulders, try a gentle rub with some plain oil or lotion with a drop or two of lavender oil in it. Some easy yoga or stretching sessions might be nice.
I hope this gives you some ideas. Get an appointment with your doc and get some better meds, both preventative and abortive. See if taking supplements like magnesium, B2, Petadolex, turmeric, fish oil, etc, will work for you. There's a lot to learn!
Sometimes that same thing will trigger migraines for me. I can't stand the cold breeze of the AC on my face or head. Instead of a hat, maybe you can try one of those fleece headbands. They're lighter weight and warm. They look goofy of course, but if you're in a hotel room, nobody will see you, so who cares?View Thread
Have you seen a neurologist specializing in headaches/migraines? There are a lot of good treatments that might help you that they could plan with you.
For non-Rx and such treatment, there is Blowfish, an aspirin and caffeine blend, that is good to take at the first sign. I like it because it doesn't have any acetaminophen. It works well to knock down minor migraines for me. Ice packs on my head with heat on my back also help. Don't take NSAIDs too frequently or you'll get worse headaches (you can google rebound or medication overuse headaches.)
But ultimately it was Rx meds and lifestyle changes that made the biggest difference for me.
Have you discussed being referred to a neurologist? Her symptoms may be familiar to you, but a pediatric headache specialist is probably the best place to get a good diagnosis and treatment plan, especially since your pediatrician isn't giving much guidance. Has any imaging been done?
Please consider getting another doctor's opinion, there are different options available than when we were young. Serious pain isn't normal for a child and should be checked out.
Okay, that's enough for now. Let us know how she's doing View Thread