My understanding is that the DEA is not making any changes to Rx requirements. However they are putting pressure on doctors to dial down the amount of scripts they write. And doctors don't want to be visible so they're trying to comply where possible. Sometimes they're in a no win position. But then you're stuck in pain, trigeminal neuralgia is more extreme than many of us will ever experience.
It would be good for you to discuss your situation again with your doctor. If that doesn't work, then you probably need to find someone else. I don't think you can deal with that without the drugs. Is there a teaching hospital near you or a good neurology department?
I will agree with your doctor about the different pupil sizes, it happens frequently and doesn't necessarily mean anything at all, even with your recent history. Many of us, including me, have odd pupils which don't dilate in unison. Before and during migraines, the differences of my pupils get more pronounced, but some of my other muscles also do that.
You've given us a good and detailed list of symptoms that could be related to an illness, stress, or maybe even fatigue. I'm going to put this together with your letter from 2 weeks ago and ask you to try to relax and wait for your neuro appointment.
You've been seen by a few docs now and none of them have alerted to anything being acutely wrong. They are comfortable that you can wait until the appointment later this month and be fine. Their opinion is more valuable than any of ours here on this board. Especially with your own doc knowing your history of childhood epilepsy, and her being comfortable waiting for the neuro appt. That really speaks volumes that things are essentially okay with you, because she
Of course, if you have anything suddenly happens like a sudden sharp blinding pain (not a sharp twinge), you'll want to head to the ER. Otherwise, I think your current symptoms are mild and benign enough that you can tolerate them for a little longer.
Keep up with these notes, they will be helpful to the neuro. Maybe have someone accompany you to the appointment. If you're afraid or anxious it might help to have another person there to listen to the doc and take notes.
Do you have some techniques that might help you move away from the fear a little? Deep breathing, yoga, music, taking a walk, snuggling that sweet little boy? How about going out to a movie with a friend? Just be easy on yourself, I'm sure you're doing great!
I'm glad things are better, nosebleeds really are disgusting.
Since you can't get to a doc, here are a few things that might help cut down the frequency of the migraines.
First, seriously you need to get away from that daily dosing of NSAID. That alone will significantly decrease the number of episodes. Plus your nosebleeds kind of indicate that you're experiencing the bleeding side effect, which isn't good. (You can research med overuse and rebound headaches.)
Add these daily supplements.
Riboflavin (vitamin B2) and Magnesium
Have you discussed this with your doctor? Often enough they are aware of this and can change your Rx to generics. Maybe they can put you on some of the old beta blocker, antidepressants, and/or others that are on the $4/$10 lists at the grocery stores and Target.
If you have insurance you'll need to find the list of meds on their pharmacy, those will be the cheapest. Take that with you to dr appointments and let's hope that they are the meds that will also work for you. I use both insurance and the $4/$10 list.
We each need our own unique mix of pills and supplements to manage them. My current Rx mix is topiramate, nortripytiline, atenolol, rizatriptan (maxalt), sumatriptan. They're all generic now, some are cheap but some aren't.
Sounds like you're having a miserable time there with daily migraines, add a cold, and then you get a couple of nosebleeds on top. Not much fun for this weekend!
You probably already know that the excedrin itself is likely contributing to the migraines, there is a lot of evidence showing that. (You can goggle "Daily NSAID migraine" and find plenty of information about medication overuse.) There are better Rx meds to prevent daily migraines, I take some myself, and they're easier on the whole body. Many of them are generic now and don't cost $$$ especially if you have insurance.
Excedrin has Tylenol in it. Recently there are warnings to decrease exposure to that in general, I think for liver toxicity but don't quote me there.
The daily aspirin dose is also probably linked to the nosebleeds. They seem severe enough to need medical attention. If there's a mini clinic nearby they can help treat a cold with nosebleeds. I'd recommend using a neti pot for the congestion, but I'm not sure if it would help or hurt the nosebleeds, the mini clinic will know that part.
Definitely find a headache "specialist" soon! and get away from taking Excedrin every day. Maybe start a headache journal and you might find triggers. Eat good food, avoid things in packages and with ingredients from chem labs.
I thought the note about trigeminal nerve pain was a good thing to consider. It is so closely related to migraine that researching one or the other might uncover helpful ideas. We usually try not to dismiss things here in this board, getting conversations going is what we do.
Do you have mini clinics that you can go to? They often have excellent care at lower prices than the ER, and sinus infection is definitely the kind of thing they treat. It might be good to go in and see if a different antibiotic will work better for you. Where I live they can be found at some chain pharmacies, grocery stores, walmart, etc.
Antibiotics can have side effects of nausea, so please don't worry too much about that. Google how to manage it with crackers and ginger ale, or whatever works for you. When you go to the clinic, ask them about the nausea. There are meds to manage it, but they might not want to Rx that for you, depending on the severity and if you're nursing.
I'd think that you might be exhausted/depleted with everything you've been through since October. Take some time to rest, and allow yourself time to recover. Ask for help. You're going through a major life change, so be easy on yourself and you'll be just fine. Remember, Superwoman didn't have any babies because she was too busy doing other things