The ct scan won't give anything the mri doesn't. This type of headache could have organic causes, fortunately they are all pretty much ruled out since the mri and mra looked good. You could still have IIH which is why the neurologist wants to do a spinal tap I guess. However, this is quite unlikely too since the mri didn't show any signs of this.
There is something called primary cough headache/primary exertion headache that gives these symptoms. It is generally treated with indomethacin.
There is also a possibility that you have some kind of weird migraine that gets triggered from these events you describe. Then you should try some migraine prophylactic, usually a blood pressure drug like propranolol or verapamil.
These kind of symptoms could be a form of migraine or it could be what is called cough headache but it could also be caused by an intracranial disease. If you would indeed have some intracranial disease (which we hope not) then a chiari type 1 malformation is the statistically most probable cause. There are others: dural stenosis, IIH, brain tumor, intracranial hypotension, aneurysm etc; basically anything that could cause an increased pressure in your brain.
Don't worry about this. Probably it is migraine. Even if it is chiari or something else they can operate this and in the end people with chiari don't have to suffer more than people with migraine.
But you must check this out. The sooner the better. The good thing is that there is a very good test to do; a MRI of your brain. With this simple but high tech test they can see all these potential conditions and if the MRI comes back normal you are cleared. It is best to have it done with gadolinium contrast. It does not hurt a bit. Bring earplugs because the machine is loud. And bring a friend to feel safer.
Your other option is to go to an eye doctor. Most of these conditions effect the eyes. The doctor can look in your eyes and if everything looks good there is a good chance that you are cleared. The eye doctor will probably order the MRI if you tell him/her your symptoms.
Don't worry but please don't ignore this. What ever it is it is fixable but if you drag it out you might get irreparable damages (mostly on the optic nerve) and you don't want that.
When the blood pressure drops upon standing it is called orthostatic hypotension. People with POTS usually don't have a drop in blood pressure, some might even have increased blood pressure because of the heart over compensating. The hallmark of POTS is instead increased heart rate.
It is hard to draw a line when a person can be said to suffer from POTS and when not. The common agreement is a raise of 30 bpm or more upon standing. How symptomatic the person is must also be included when making the diagnosis. I don't think I am being terribly unfair if I say:
Your doctor is incorrect and you should get a second opinion!
Do you also suffer from the brain-moving-in-skull feeling? Have you done a MRI of your brain?View Thread
It has been discovered that I am suffering from a syndrome called postural orthostatic tachycardia syndrome (POTS). So now it is very unclear to me if these weird brain-loose-in-skull feelings are caused by migraine or by my POTS.
And to complicate things even further; the migraine could be caused by POTS and the POTS could be caused by migraine.
I guess time and medications will tell. I just hope I will find something that works in the end.
If someone wants to check if you also have POTS-like symptoms it is easy; you just take your pulse sitting down and then again standing up. If you are healthy the pulse should go up with about ten beats per minute. In POTS patients the pulse usually goes up more than 30 beats. This is because the body is struggling with getting the blood up to the head so the heart is pumping a bit extra to compensate. You can also feel a bit faintish if you take hot showers, that is usually a sign.
Hi! Just wanted to see if anyone had any progress, found any working medication or similar. Please post your experiences. Oh, and by the way, for me everything started with a back injury, how did it start for you?
I have heard many people with post concussion syndrome having these symptoms. Myself, I did not get it after a concussion. But I do have some old neck injuries so it might possibly be related to that. Maybe, maybe not.
But the only people I have talked to who have had this and have been diagnosed have either had pcs or a csf leak. I have not heard any other diagnosis yet with the same symptoms. But neck injuries are a possibility.
Remember to keep us posted if you find something out!